95 replies to this topic

[blind12]

Don't take oral corticosteroids.

You don't have to take any, if you happen to have high cortisol.

[Centurion]

So, apologies for bumping a very old thread, but I thought an update was in order.

 

Its now been about seven years since I was floxed. For the past seven years, I've led a very active live, Hiking, Camping, a little weightlifting, and things have went well at work. 

 

Recently however (for the past 2 months or so) I've had unexplained pain in all of my joints. The only antibiotic I've had since the floxing is Amoxicillin.

 

Could this joint pain really be flox related after so many pain free years of feeling fine?

[blind12]

Sharp relapse, often years after initial recovery, is a common complaint among floxies.

Sometimes in response to triggers. NSAIDs have been named as one.

 

I got some minor pain in an old FQ-torn tendon, and a new weird shoulder rupture recently, 3 years post initial cipro course

(which was for a phantom "prostatitis", which was actually an ureteral stone, which I peed out, in the end).

Edited by blind12, 22 September 2016 - 10:45 PM.

[blind12]

It's nothing to do with fluoride The 1st generation of quinolones without fluoride did the same damage... I'm not sure where the idea that is was the fluoride came from =/

 

There was a hypothesis on "Hacking fluoroquinolones"  FB group that some fluoride-containing metabolites might contribute their specific toxicity.

But it if true or if true in some individuals with specific metabolism variations, it wouldn't seem to be the main mechanism.
 

[blind12]

A severe reaction would mean a high dose (1+gramm) and multi week cipro therapy and multiple years of severe ADR's, and possibly some lifetime debiliations (lifetime in the classic sense of course).

 

Some, very few, people say they're disabled from systemic effect of fluoroquinolone eye drops.

Some, more people, break severely from one 500mg pill.

 

Some withstand multiple heavy courses, oral and IV... and then break.

 

The inter-individual tolerance seems to have a galactic range.

[Centurion]

So it's been four months since I first mentioned a possible "relapse" of Cipro symptoms.

Joint pain is very mild / intermittent and isn't seriously getting in the way of things.

 

Right now my main concern is possible nerve symptoms or peripheral neuropathy.

 

I regularly get tingling in the hands and feet, and a burning sensation in the feet at times as well.

 

The only thing of note which has been happening lately, is that this winter has seen a lot of people around me catch quite a lot of colds / viruses.

 

I've had a cold / chesty cough of some sort or another off and on for the past five months.

 

Right now I have what I suspect to be the adenovirus cold which is doing the rounds in the UK.

 

This prickling sensation / burning sensation is very unsettling.

 

I understand that floxing issues can arise years later - but 7.5 years later seems quite a long time no?