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Multiple sclerosis

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#31 Clarity

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Posted 26 September 2012 - 01:37 AM

Niner: Olive Oil is good stuff. I've been taking a tablespoon at night, I have adrenal, glucose and possible thyroid problems - it just makes me feel so much better. When I keep up with it, it gets rid of my joint pain.

I don't know about viral triggers regarding my brother, but he does have syringomyelia - a syrinx in his spinal cord. It has been stable for a long time. But maybe it has affected spinal/brain circulation, making MS more likely?

I was reading some studies about this upcoming drug BG-12. I read that it is fumaric acid (or Dimethyl fumarate as they call it). It has shown to reduce relapse by 50% with few serious side effects (of course it's a synthetic now, and that will happen). My question is, there are fumaric acids in supplement form. Would they work the same possibly?


I agree that olive oil is good, but C60-olive oil is something else entirely. It is olive oil that's been reacted with a particular form of carbon known as "C60" also called fullerenes or buckyballs. (Named after Buckminster Fuller) This combination first came to the world's attention after it was found to increase the lifespan of Wistar rats by 90%. Since that discovery, there has been a lot of interest in it here, which is collected in the c60health forum. We've found it to be profoundly helpful for people with compromised oxygenation or mitochondrial issues, allergy, and inflammation. There are two sources on the net, one in the US and one in the EU. Details are in a couple different threads in the above forum, or you could find them with google. (this is the US site)

BG-12 looks good. I presume it will be approved relatively quickly. Dimethyl fumarate is quite different from fumaric acid, however. I wouldn't expect them to act the same. You might be able to find dimethyl fumarate on the net. It's been used as a drug in Europe for some other purpose, and has also been used as an anti-microbial.


I thought about the C60 vs. regular olive oil after I posted, and realized they were probably different but was too tired to edit. I'll definately have to check that out. Can't believe I never heard of it.

Thanks for the BG-12 info too. I will look into it. I was looking at the fumaric acid supplements and saw they were sometimes labeled for psoriosis (sp), and also saw that they used the Dimethyl F in Germany for psorioris - so I thought maybe they were similar.

#32 shp5

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Posted 26 September 2012 - 03:02 PM

in humans, c60 is currently only used by a few heroic (and maybe crazy) people in self-experiments. if I personally had aggressive MS I would give it a try, but it is hard to recommend someone else.

anyway, thanks for the heads-up niner.
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#33 Clarity

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Posted 26 September 2012 - 03:20 PM

Yes, I read the thread and while it sounds exciting, I think I'll leave the experimenting to those brave enough to try it. :wacko:

#34 medievil

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Posted 09 February 2013 - 10:10 AM

Hmm i started suspecting i got ms as that means i dont have several issues but only one issue, it explains every little issue like taking time before i can pee lol, so i tried a few things to see wheter i notice symptions improvement especially since many stimulants cant break trough the extreme fatigue anymore (not related to tolerance it relates to the adronergic effects i think) 30 pills ritalin with 30 dexedrine's didnt wake me up, its anoying as hell i cant function without stimulants since 2 years ago randomly on my testosterone cycle, stim comedowns dont help but they definatly didnt cause it, but that i stay completely unfunctional on dexedrine too now goes to far.

I was allright for a year so seems if its ms its the second flare up, i seem to be unstable a week sounding really unstable then back allright then delusional idea's or cant walk around at all for an hour, the symptions reverse extremely fast tough wich can be explained by the 90% remyelation seen in some early individuals.

Threw in a statin for t immume modulation, phenytoin to protect against axon degeneration, diclofenac and need some remyelation stuff, retina cream would be perfect as it binds to that carrot x receptor. Also had cream with a antibiotic related to minocycline with anti inflammatory effects, woke up without my body pains and shit wich is quite cool but doesnt mean much.

Seems it can be comorbid with shizophrenia, at the early phases seems that it can easily be controlled tough.

Edited by medievil, 09 February 2013 - 10:13 AM.


#35 medievil

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Posted 09 February 2013 - 10:16 AM

Normal amphetamine does work, it seems noradronergic activity is what you need to wake up from the fatigue.

#36 Logic

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Posted 12 February 2013 - 11:33 AM

I dont know if there is anything to this; it just made me think of MS??

Icariin induces the expression of toll-like receptor 9 in ana-1 murine macrophages.
http://www.ncbi.nlm....pubmed/21538629
"...Stimulation of Ana-1 murine macrophages with icariin induced a significant dose-dependent expression of TLR9, and its mRNA expression which increased from 3 h post-treatment was approximately five-fold that of DMSO-treated cells. Several molecules, such as myeloid differentiation factor 88, tumor necrosis factor-α and interleukin 6, which are involved in the TLR9 downstream signaling pathway.."

#37 renfr

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Posted 12 February 2013 - 07:16 PM

What would prevent MS in healthy individuals? Such a terrifying disease. I don't know what is worse, MS or the average cancer....
Do any of the popular supps we take on this forum INCREASE the risk?

VItamin D is definitely preventive. Proper choline intake may help as well as antioxidant supplementation (MS being an inflammatory disease these can help against formation of brain lesions).
Also immunomodulative drugs should help bringing back a normal balance to your immune system.

#38 niner

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Posted 12 February 2013 - 07:45 PM

in humans, c60 is currently only used by a few heroic (and maybe crazy) people in self-experiments. if I personally had aggressive MS I would give it a try, but it is hard to recommend someone else.

anyway, thanks for the heads-up niner.


There are probably sixty to a hundred c60 users who have posted here, maybe more. Based on the sales of pre-mixed c60-oo, there are probably several thousand people using it. If they were organized into a clinical trial, it would be enough to get a drug approved by the FDA, but that presumes nothing bad happened to anyone. So far, I've not heard of any serious adverse events. If I had MS... well, I'm already taking C60-oo, so you know what I'd do, but if I had a loved one with MS, I'd recommend it. I'm not sure if I'm heroic, crazy, neither or both. I probably have more risk tolerance than a lot of people, but I consider these things pretty carefully, too.

Lister's roommate has MS and has tried c60. He mentioned that she claimed her balance was better. It would be interesting to hear how that's going.

#39 Lister

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Posted 13 February 2013 - 03:52 AM

in humans, c60 is currently only used by a few heroic (and maybe crazy) people in self-experiments. if I personally had aggressive MS I would give it a try, but it is hard to recommend someone else.

anyway, thanks for the heads-up niner.


There are probably sixty to a hundred c60 users who have posted here, maybe more. Based on the sales of pre-mixed c60-oo, there are probably several thousand people using it. If they were organized into a clinical trial, it would be enough to get a drug approved by the FDA, but that presumes nothing bad happened to anyone. So far, I've not heard of any serious adverse events. If I had MS... well, I'm already taking C60-oo, so you know what I'd do, but if I had a loved one with MS, I'd recommend it. I'm not sure if I'm heroic, crazy, neither or both. I probably have more risk tolerance than a lot of people, but I consider these things pretty carefully, too.

Lister's roommate has MS and has tried c60. He mentioned that she claimed her balance was better. It would be interesting to hear how that's going.


Erin took C60 for about 2 months. She feels that it was an improvement however she’s dealing with the post benefit after effects of Liberation Therapy which is really all about her MS getting much worse.

If you take the line of thought that MS involves a restriction of blood flowing through the neck veins then any assistance given to your circulatory system will be of benefit. C60 certainly seems to help with that and thus Erin felt there was some benefit.

At the minimum she had no negative effects, thus trying larger doses of C60 may be very beneficial for someone suffering with C60, especially if they’re not physically fit. Whatever the case it’s a risk as we don’t fully understand the effects of C60.

She did try Resveratrol and Alpha Brain too; Resveratrol seemed to do nothing and Alpha Brain had the reverse effect (made her slower).

Edit: Erin says that Chia Seed has the biggest effect on her MS. She also takes lots of Omega 3.

Edited by Lister, 13 February 2013 - 03:58 AM.


#40 smithx

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Posted 13 February 2013 - 04:08 AM

I know I posted this before, but please look into n-acetyl glucosamine:

“This sugar-based supplement corrects a genetic defect that induces cells to attack the body in MS,” said Demetriou, associate professor of neurology and microbiology & molecular genetics, “making metabolic therapy a rational approach that differs significantly from currently available treatments.”


More info here: http://today.uci.edu...r_ms_110930.php

It may be necessary to start with fairly high doses, like 12g/day or so. I had what was diagnosed as Guillain-Barré syndrome, with very disturbing symptoms, and 12g/day of NAG made them fade until they are now almost completely gone. I still take a maintenance dose of 4.5g/day, and have found that symptoms start returning if I go much below that.
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#41 Caravaggio

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Posted 19 February 2018 - 09:42 AM

C-Phycocyanin and Phycocyanobilin from Spirulina should help with remyelination.

 

C-Phycocyanin and Phycocyanobilin as Remyelination Therapies for Enhancing Recovery in Multiple Sclerosis and Ischemic Stroke: A Preclinical Perspective

Giselle Pentón-Rol,1,* Javier Marín-Prida,2 and Viviana Falcón-Cama1

https://www.ncbi.nlm...les/PMC5791033/



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#42 dazed1

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Posted 20 February 2018 - 02:14 AM

Rosemary

Ginger

Black Seed

Luteolin

Resveratrol

Turmeric

Na-rala

D3 - K2 MK4

Bioactive B complex high dosages (benfotiamine as well)

PQQ

Ubiniqol

Tocotrineol

Mehylselenocystine

And plant based diet 

 

 







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