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Eppstein Barr Virus is damn scary

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#1 mandible

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Posted 16 April 2015 - 11:01 PM


I recently googled EBV a bit and I was shocked. I thought that this is something which can easily be diagnosed

and treated but from what I read the lab tests which exist are not clear and safe at all.

I also read that the majority if the population has EBV! How crazy is this? Does this mean you could contract EBV simply by kissing

another person?

I really had NO idea at all that even kissing could be that dangerous. Imagine the other person has EBV and you kiss her then you also have it.

 

What then totally dragged me down is what I read a homepage of an alternative healing doctor who basically wrote that normal lab tests for EBV

deliver false negative results and that many people where they think the virus has become inactive is still active. Bottom line was that normal labs and doctors

cannot help and that only the special kinds of diagnostics which he uses can help.

As cure he uses a mix of herbs and other stuff like nanoparticles.

No idea what to think about that.

 

But what totally got me down was realizing how little modern medicine seems to be able to do against stuff like EBV or Lyme. I mean those which have chronic Lyme

are totally screwed. Ordinary doctors probably are totally unable to help these poor people. This is so discouraging. :sad:

 

I have a lot of symptoms like (cfs,depression,joint pains,adhd....) which could all somehow fit into EBV.

The alternative healing doctor has a few questionaires on his homepage with symptoms which fit to EBV and I had nearly every single one of them.

This totally freaks me out. It feels like searching for a possible cause and cure for my many symptoms is basically impossible. It feels like an absolutely hopeless

fight.



#2 corb

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Posted 17 April 2015 - 06:37 PM

Viral infections cannot be "cured". And in the case of latent viral infections they cannot be diagnosed with any certainty either.

 

The best prospects for a cure are targeted somatic DNA therapies like CRISPR. Every other "treatment" is snake oil.


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#3 mandible

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Posted 18 April 2015 - 09:57 PM

Is this CRISPR experimental or does it already exist as therapy for ordinary people?

 

This stuff is really scary. I read that EBV can already be transmitted via kissing. How crazy is this?

I mean sex is dangerous because of HIV I was aware of that. But I wasn't aware that kissing is also totally dangerous.

This can easily make you become totally paranoid. :|o



#4 corb

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Posted 19 April 2015 - 10:57 PM

Is this CRISPR experimental or does it already exist as therapy for ordinary people?

 

This stuff is really scary. I read that EBV can already be transmitted via kissing. How crazy is this?

I mean sex is dangerous because of HIV I was aware of that. But I wasn't aware that kissing is also totally dangerous.

This can easily make you become totally paranoid. :|o

 

Experimental.
The latest development with CRISPR is reprogrammed HIV viruses to cure HIV. But that's just in the planning phase.



#5 Omega 3 Snake Oil

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Posted 19 April 2015 - 11:39 PM

I've had some experience with EBV, message me if you have any specific questions.


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#6 ceridwen

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Posted 19 April 2015 - 11:47 PM

HSV1 can also be passed on by kissing and is even scarier :ph34r:


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#7 niner

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Posted 20 April 2015 - 02:00 AM

EBV and HSV1 are two of the most common human viruses.  On the order of 80 to 100% of adults are infected with EBV, depending on the country you look at.  If I had a choice, I'd prefer not to be infected with either, but I suspect I'm infected with both.  So what.  It doesn't seem to have a huge negative effect on most people.  Yes, it raise the odds of getting certain diseases, but it's not exactly a death sentence.  There are lots of things that are bigger threats.



#8 xEva

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Posted 20 April 2015 - 10:10 PM

I've had some experience with EBV, message me if you have any specific questions.



Why keep it a secret? I'm also curious :)

 

Viral infections cannot be "cured". And in the case of latent viral infections they cannot be diagnosed with any certainty either.


This is not true. It depends on the virus. Now that hepatitis C virus has been cured with a whole array of different, specific antivirals it's likely that a similar technology will soon lead to cures for many other viruses.

Edited by xEva, 20 April 2015 - 10:16 PM.


#9 Omega 3 Snake Oil

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Posted 21 April 2015 - 12:14 AM

 



Why keep it a secret? I'm also curious :)
 

 

About three years ago I had a bout of temporary, partial paralysis a neurologist thought was a mild case of Guillain Barre. Just as that was resolving I got a flu like illness. Then I stopped sleeping. As in, lost the ability to fall asleep. Everyone thought I was going crazy, meds did nothing for me. Had a sleep study done which showed a complete lack of slow wave sleep (stage 1 sleep only). I was a wreck. Started with internet research and came across a ton of stuff linking EBV to all of my symptoms. Found a doc who specializes in this, he referred me for testing which showed a recently active EBV infection. I didn't have anything else, ie HIV, so it seems the EBV was the culprit. I was on acyclovir for around 10 weeks which I don't think did much help. The doc did tell me how I could sleep again--high dose melatonin. I needed about 100 mg for a while, then 80. Now down to 30 which I've been on for about two years. I take a lot of supplements to keep my immune system functioning and my energy levels up. I manage. My sleep is still poor though


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#10 corb

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Posted 21 April 2015 - 12:58 AM


This is not true. It depends on the virus. Now that hepatitis C virus has been cured with a whole array of different, specific antivirals it's likely that a similar technology will soon lead to cures for many other viruses.

 

 

Most people with chronic HepC still need a liver transplant. And considering HepC can infect the nervous system I wouldn't be surprised if the "cured" go into HepC "remission" eventually.

Antivirals can only inhibit viral development, as long as there's viral DNA left in a cell with a slow enough cellular turnover time, it's just waiting for the right time to reappear. And if it's in the nervous system it's there to stay.



#11 xEva

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Posted 21 April 2015 - 06:16 AM

This is not true. It depends on the virus. Now that hepatitis C virus has been cured with a whole array of different, specific antivirals it's likely that a similar technology will soon lead to cures for many other viruses.

 
Most people with chronic HepC still need a liver transplant. And considering HepC can infect the nervous system I wouldn't be surprised if the "cured" go into HepC "remission" eventually.
Antivirals can only inhibit viral development, as long as there's viral DNA left in a cell with a slow enough cellular turnover time, it's just waiting for the right time to reappear. And if it's in the nervous system it's there to stay.


I'm afraid you're grossly misinformed here. again, there are several new drugs that came out just recently. some combos eradicate HCV in only 6 weeks. eradicate, not suppress, as was often the case in the past with interferons.

and liver transplant was needed in very rare cases -- far from "most", after more than 30 years of infection. eradication of the virus allows the liver to recover from mild forms of fibrosis, in rather short time, according to the recent studies.

HCV is about to become the thing of the past. some other viruses will soon follow.

#12 corb

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Posted 21 April 2015 - 08:29 AM

 

I'm afraid you're grossly misinformed here. again, there are several new drugs that came out just recently. some combos eradicate HCV in only 6 weeks. eradicate, not suppress, as was often the case in the past with interferons.

 

I'm not.

The antivirals in question inhibit a number of viral proteins, but that's all they do. If the infection is in the right place, it will remain unbothered even if it's treated in this manner - the success rate of such antivirals isn't 100%.

 

This technique is ok for chronic infections but can't do anything to a latent infection. Eppstein Barr being a latent viral infection, antivirals like these are completely useless in dealing with it.

 

Somatic gene therapies can literally eradicate a virus, they remove or inactivate the viral DNA inside your cells, for latent viral infections they are the only hope for a "cure". Even they will probably not be 100% effective, there's no panacea in medicine but still better than nothing.



#13 xEva

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Posted 21 April 2015 - 05:48 PM

well, HCV specialists would disagree. These antivirals bring the number of virions (the evidence of virus activity) from millions per mL to 'undetected' in days. And then, if this 'undetected' status is maintained for months and years to come, without the drugs, that's considered a cure.

Even the vast majority of people who became 'undetected' on interferon+, have never had the virus return, though decades passed in some cases. You still believe it is hiding somewhere? Where is the evidence of that? The fact that some relapsed sometime after being 'undetected' at 6 months past therapy proves nothing. Usually they have some confounding factors, like cirrhosis, advanced fibrosis or fatty liver disease -- but imagine, new drugs now cure even 95%+ of these not long ago incurable cases!

It's true though that there are various viruses and EBV is quite different from HCV. Still, spectacular recent progress with HCV makes the future look promising :)

#14 corb

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Posted 21 April 2015 - 06:41 PM

Even the vast majority of people who became 'undetected' on interferon+, have never had the virus return, though decades passed in some cases. You still believe it is hiding somewhere?

 

HepC being a RNA virus there's less chance of it to hide somewhere.
But with DNA viruses integrated into your own genome like Herpes - Epstein Barr being a Herpes virus I think this is important for this thread -  can hide forever. Just like cancer.



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#15 mandible

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Posted 29 April 2015 - 01:30 AM

I was thinking about getting tested for EBV but now I'm unsure. I mean does it even make sense?

I highly doubt that even if I had it my intern would be capable of treating it he would probably simply say it's harmless.

It's the same with Lyme. I mean I had various Lyme tests, sometimes negative sometimes unclear, one positive and what does

my doc say? Probably nothing to worry about.

Great help!

Ordinary doctors are so useless it's awful. I mean if you have a flu they can help you but if you have multisystemic symptoms of unclear

genesis then they are absolutely useless. :sad:

And I also cannot tell if Lyme or something else like EBV could cause some of my issues or not. When I read lists of symptoms of stuff like Lyme

then the symptoms are so broad that I have many of them but at the same time they could also be caused by something else. When you're sick you

simply have many different symptoms.


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