19 replies to this topic

[Breakthrough]

I have dealt with lifelong sct, and the one time I thought I had a real breakthrough was when I introduced a simple 3-strained probiotic into my regimen (the strains evade me at the moment).  The effects surpassed a honeymoon period and lasted for a solid month.  For that time my SCT symptoms were nonexistent and I was sharp, sociable, and lively.  However, for whatever reason those affects faded and I have been unable to reproduce them with various other probiotic brands.  I suffer bloating and indigestion commonly after large meals (especially with carbs).  I also deal with full body itching fits when I am not on probiotics.  

Has anyone with SCT/ADHD-PI symptoms found any success through addressing gut health? 

[jack black]

i may not have SCT (i really don't know what i have, but ADHD is one of my problems), but I feel better after diet with lots of veggies, some cooked, some fresh. All kinds of beans seem most beneficial. i limit carbs (except for some fruits) and meat proteins because they make me feel tired or irritable. it has been shown that feeding your good bacteria with food fibers is beneficial for health. on the other hand I never felt anything from swallowing probiotics and drinking kefir. aren't most of those killed in stomach?

[Breakthrough]

I just finished a 5 month long Keto diet after not reaching the cognitive goals I originally set out for. I saw improvements with certain aspects of focus and creativity but my brain still felt empty too often and my memory still porous. I reincorporated carbs when my naturopath recently suggested a fruit and veggies diet to take stress off my liver/kidneys. He ultimately wants me in a vegan diet but I see know evidence that such a diet will address my issues.
The short-lived success with the probiotics gave me optimism, and when I dove into the word of the microbiome, the material made a convincing argument for the link between the brain and a healthy gut, aka ‘the second brain’.
Therefore I’m curious if anyone with a legitimate case of SCT/adhd-pi has achieved long term success by healing their gut.

[Breakthrough]

Additionally, I would love to hear people's experiences with Fecal Matter Transplants and whether they had affects on ADHD symptoms...

[Mind_Paralysis]

 

I suffer bloating and indigestion commonly after large meals (especially with carbs).  I also deal with full body itching fits when I am not on probiotics.

 

I don't. I seem to respond the same as others, after a large meal - full and a little bit tired, but everybody responds that way.

 

I have eczema, that comes and goes, but they actually move about a bit, and they are generally not triggered by things I eat, but from skin-contact with allergens.

I don't have any full body itching, or even wide-area itching.

 

Some of my most activity has actually been when eczema's have been bad (as in: super-dry skin that cracks and oozes puss) - doesn't seem to affect my SCT-symptoms whatsoever.

 

 

Look, I understand that you want to find something that works, we all do, but I think you're barking up the wrong tree here - so far, most of the evidence is pointing towards this being an inheritable brain-disease - and the symptoms have been described as early as the 17th century - possibly, like ADHD, since antiquity.

 

There's also, like with ADHD, cases reported from every corner of the Earth - the amount affected appears to be fairly stable throughout human population - similar to other inheritable brain-diseases. (bipolar, ADHD, et c)

 

There's no evidence of any significant effect on the symptoms coming from some kind of food-allergy or something like that... In fact, there's evidence of permanently altered activity in very specific parts of the brain - the SPL (superior Parietal Lobe) and the DMN (default-mode network). This implies that it's a genetic disorder - our brains are MEANT to be in complete confusion at most times.

 

 

I really hope you find something that works, with microbiome and gut health, but I personally don't have any faith in it...

Edited by Mind_Paralysis, 24 June 2018 - 01:35 PM.

[irony]

Would love to know the strains/brand OP if you happen to  recall them.

[Breakthrough]

I hear you, Mind_paralysis.  I just can't make sense out of the windows of clarity that come about every once in a while and allow me to feel normal.  Either they're related to something that I'm doing or they're just brief teases that my body/brain allows me to experience.  If my brain is damaged then how can I achieve these 'good days'...  The inconsistency is perplexing.

 

Irony, I will try to update this when I find out at the doctor's office next week.  I don't think they were anything exotic but the brand is exclusive to the physician I'm seeing.  Will let you know though.

 

[Breakthrough]

Irony, the probiotics was a 30 Billion CFU blend of Lactobacillus acidophilus, bifidobacterium longum, lactobacillus plantarum, and bifidobacterium lactis

[triguy]

I hope this is not off-topic

 

 

I am experiencing Gut issues.   Is there a way to TEST which probitiotic strains is NEEDED by your body???

 

thx

[giant]

I have ADHD and I struggle with innatentiveness even with medication, which helps A LOT but its not perfect nor do I expect it to be.

However, I went gluten free a number of years ago in order to figure out if I was sensitive to gluten... Well! It turned out that I am sensitive to gluten. Though I am clearly not as sensitive to gluten to have coeliac disease as tests for that have come out as negative.

Ever since I have went gluten free I have a lot less fatigue and it is easier to focus rather than feel mentally unable to all of the time due to the sheer fatigue.

However, even being gluten free, I still suffer from some sort of mild fatigue all of the time. I spoke to a practitioner once and she reckoned it was adrenal fatigue. She recommended a product called Nutri Adrenal Extra. I take this on a daily basis - with it I never feel sluggish! (Unless I've had a lack of sleep, but that's normal sluggish)

Hope this helps! You never know, we could be similar!

[triguy]

what is SCT??

[Mind_Paralysis]

what is SCT??

 

Simply put, it's a proposed new neurodevelopmental disorder, aka something similar to Autism or ADHD.

 

The symptoms are in some ways similar to ADHD, but in many other ways, the complete opposite:

 

slow movements,

lack of initiative,

over-cautiousness (in contrast to the impulsivity of adhd) and

a lack of mental and physical energy.

 

You can read more about it here:

https://en.wikipedia...cognitive_tempo
 

In previous variations of the DSM and ICD the symptoms were kind of considered a separate disorder from ADHD, but for various reasons it was baked into ADHD. However, Dr.'s eventually started realizing how different these patients were, from the hyperactives, especially in the fact that stimulant medication DOES NOT WORK, that a debate regarding re-evaluation of the symptoms started taking root.

 

It actually got so far that SCT only missed being added to the DSM-5 by a hairs smidgen - but, sadly, for various reasons, key ones being that the research was not as mature at the time, and that there was a great deal of pressure from ensurance-companies and politicians to NOT create so many new disorders, the diagnosis was not made official.

 

More recent research however, have truly started to hammer out that it's most likely a different disorder - mainly because all other ADHD-symptoms have been seen to recess when given various adhd-drugs, but not the SCT-symptoms - it's also now possible to diagnose, to categorise, the symptoms with different parameters and scales than ADHD - you can actually measure it now.

 

The symptoms of ADHD and SCT also correspond to different aspects of the neurological model for Attention - this also implies that there may actually be MULTIPLE other attention-disorders, other than these, potentially, two.

 

And, most damning, fMRI and other neuroimaging technologies have found differences in brain-anatomy between ADHD-ers and SCT-ers, showing that patients with SCT-symptoms show abnormalities in the BACK of the head - in the Superior Parietal Lobe and parts of the Default Mode Network - the patients with ADHD do not show these abnormalities, they show abnormalities in the FRONT of the head, in the Pre-Frontal Cortex. In fact, the abnormalities in the SPL are fairly unique for SCT.

[MichaelFocus22]

    Ok first off, SCT is merely a hypothetical diagnosis made by Dr. Barkley for a potential distinctive disorder made, to distinguish from ADHD when he noted, that certain people who were adhd didn't react as well to the classical, stimulants given, such as; concerta, straterra,ritalin,  dexerdrine ect. There is no confirmed DSM given by the FDA at this point and it's merely a hypothetical construct for a list of co-morbities that could fit a variety of disorders. My recommendation quit obsessing over a cure, there is no cure, I've searched for every theoretical and practical means to solving the problem, there is no way to fix it. Just manage it and start enjoying your life, it's not that BAD. The very act of obsessing over it will leave you chronically miserable and depressed because you wish you were like everybody else. Just stop wasting your time, your in for a cycle of failure, anger and rage. Trust me it's not good for your mental health, obviously my life has been left in ruins, but it's not as bad it appears. Just manage it as best as you can, with what's given to you. I recommend you look at my reference thread for ADHD-PI, it will be VERY helpful for you assuming you follow it accordingly. I'm a very high functioning individual so heed my advice. Finally let's stop worshipping Dr.Barkley, I've studied his work, there isn't anything instrinsically unique about his findings nor his specifications, he merely peddles classical views of the disorder to make the FDA mass profits. Remember all drugs are PRODUCTS at the end of the day, and we are getting a half baked product. It's pretty cruddy, we have to suffer heartattacks, loneliness, social withdrawl, isolation, anxiety attacks, tolerance buildup. I really only use medication for emergencies, if  I absolutely feel I need it. I reccomend going the holistic route and using therapy and practical training mechanisms, with medication occasionally.  What we need is new innovation in the field, seperate from the corporate state, so we can make some true innovation's when dealing with this disorder. I assure you there are numerious things, you could pinpoint, to their really isn't a DIRECT answer. The chemical imbalance crud, is nonesense and it's far  too simplistic of answer for the amount of destruction this disorder inflicts upon you. Really, you'll start feeling better once you STOP obsessing over the DISORDER, just STOP. Focus on managing it and you'll FEEL happier. I've already made a custom neurostack for 200 dollars, Not much improvement my dude. I assure you I've DONE EVERYTHING possible to find an answer. It doesn't exist, we have to make IT. Which is why Im considering going to get a PHD, to find a solution. Should a cure ever exist, the FDA would lose BILLIONS of dollars. Naturopathy is nonesense, as well it relies on untestable assumptions and naturalism to profess an answer to an incredibly complex biological dsyfunction. The probablistic cure, is using a stem-cell injection treatment that can somehow, "grow" the brain in the executive region, to develop those executive regions, by which would match the levels of a normal person. Again even that is INCREDIBLY complicated and HARD. The unfortunate answer, is you'll probably live the rest of your life this way, so stop fretting and focus on what your good at.  That doesn't mean stop fighting, it means keep everything in perspective. Stop believing it's all doom and gloom. I've LOST everything basically, and I'm not down. If you wish to ignore my message you WILL be disappointed, goodluck.

[Breakthrough]

    Ok first off, SCT is merely a hypothetical diagnosis made by Dr. Barkley for a potential distinctive disorder made, to distinguish from ADHD when he noted, that certain people who were adhd didn't react as well to the classical, stimulants given, such as; concerta, straterra,ritalin,  dexerdrine ect. There is no confirmed DSM given by the FDA at this point and it's merely a hypothetical construct for a list of co-morbities that could fit a variety of disorders. My recommendation quit obsessing over a cure, there is no cure, I've searched for every theoretical and practical means to solving the problem, there is no way to fix it. Just manage it and start enjoying your life, it's not that BAD. The very act of obsessing over it will leave you chronically miserable and depressed because you wish you were like everybody else. Just stop wasting your time, your in for a cycle of failure, anger and rage. Trust me it's not good for your mental health, obviously my life has been left in ruins, but it's not as bad it appears. Just manage it as best as you can, with what's given to you. I recommend you look at my reference thread for ADHD-PI, it will be VERY helpful for you assuming you follow it accordingly. I'm a very high functioning individual so heed my advice. Finally let's stop worshipping Dr.Barkley, I've studied his work, there isn't anything instrinsically unique about his findings nor his specifications, he merely peddles classical views of the disorder to make the FDA mass profits. Remember all drugs are PRODUCTS at the end of the day, and we are getting a half baked product. It's pretty cruddy, we have to suffer heartattacks, loneliness, social withdrawl, isolation, anxiety attacks, tolerance buildup. I really only use medication for emergencies, if  I absolutely feel I need it. I reccomend going the holistic route and using therapy and practical training mechanisms, with medication occasionally.  What we need is new innovation in the field, seperate from the corporate state, so we can make some true innovation's when dealing with this disorder. I assure you there are numerious things, you could pinpoint, to their really isn't a DIRECT answer. The chemical imbalance crud, is nonesense and it's far  too simplistic of answer for the amount of destruction this disorder inflicts upon you. Really, you'll start feeling better once you STOP obsessing over the DISORDER, just STOP. Focus on managing it and you'll FEEL happier. I've already made a custom neurostack for 200 dollars, Not much improvement my dude. I assure you I've DONE EVERYTHING possible to find an answer. It doesn't exist, we have to make IT. Which is why Im considering going to get a PHD, to find a solution. Should a cure ever exist, the FDA would lose BILLIONS of dollars. Naturopathy is nonesense, as well it relies on untestable assumptions and naturalism to profess an answer to an incredibly complex biological dsyfunction. The probablistic cure, is using a stem-cell injection treatment that can somehow, "grow" the brain in the executive region, to develop those executive regions, by which would match the levels of a normal person. Again even that is INCREDIBLY complicated and HARD. The unfortunate answer, is you'll probably live the rest of your life this way, so stop fretting and focus on what your good at.  That doesn't mean stop fighting, it means keep everything in perspective. Stop believing it's all doom and gloom. I've LOST everything basically, and I'm not down. If you wish to ignore my message you WILL be disappointed, goodluck.

 

I can certainly appreciate your optimistic can-do approach, as I trust that you have made the same frustrating journey towards a solution to no avail.  Only problem is, try as I may, the condition never lets me forget its presence.  My brain has lagged for my entire life and has recently seemed to further decline rather sharply, and at a time when I need it the most, so I can make a life for myself.  I have tried applying strict discipline and healthy lifestyle.  I've been a lifelong athlete with optimal levels of fitness and diet, with above average biomarkers and education at the best institutions in the world, yet I reached a point that am getting dumber and weaker steadily.  I can't even practice mindfulness meditation anymore due to my uncontrollable mind, much less maintain a conversation.  Once I am able to reclaim my basic adult functions, such as remembering a name or having a suitable response for small talk, I will begin focusing on the positives.  I don't mean to judge, but you seem cognitively better off than I, so just imagine yourself in the shoes of someone a bit more desperate, and that's me.  I totally respect where you're coming from though.

[MichaelFocus22]

Don't call me an optimist, I'm not even close to an optimist. Ultimately it's your choice, if you want to let it rule your life. Their's only so much you can do. Just remember every thought affects your body and mind. Like I said I'm a very high functioning individual who has been searching for a cure for my disease for a LONG time, I've searched for every possible avenue or method that could free me to reach my maximum potential. I assure you, if this problem was gone tomorrow, I'd be in the top 1% of wealthy people already. The point, I'm making here, is that chemicals will only go so far. Like everything else, their's only so much time in a day, their's only so much you can do. There's only so much information that you can consume. Stop fretting over your disease unless it's such a profound dsyfunction, that your incapable of even reaching 50% of neurotypical functioning.  If that's the case, then I recommend stop self diagnosing and go to a holistic doctor, I'd go to one myself if their were any under my insurance.  Finally, from my experience, stop pretending to be a neurotypical and attain their functioning, it'll never ever ever happen. Trust me, it toke me a LONG time to accept this. Remove self-limiting beliefs, or you will never grow, I used to be like that, you will waste your life and wonder where the time went. Letting my defect control my life was worst, than death. Make it your bitch and seize control, it might be a problem but it's only a problem to be overcome. Other than that I don't know what to tell you, if theirs a cure I'll be first to tell you. I've been binge reading encyclopedia's,journals, documentaries, ANYTHING, I can get my hands on it crush the neurotypicals. When it comes, I'll tell you. Ultimately it's up to you, if you wish to let it control you then it will.

[Breakthrough]

Well I fall under that sub-50% category and therefore will need a little chemical boost. I’m your experiences, has any substance or combination allowed you to reclaim any lost cognitive functioning?

[MichaelFocus22]

Their's plenty of neurostacks you can use, that can probably help you. Again don't really expect any high results, I paid 200$ for my stack and got a little gain. Except I kept my expectations low in order to do so.I do a DISGUSTING amount of planning and other things to manage my ADD, to the point to where I'm almost normal. Of course I don't pretend to be normal because I'll never be normal and frankly I don't want to be normal. Being normal is boring and neurotypicals are typically stupid underachieving beasts. I use concerta 36 MG twice a day, with choline, vitamin B complex gives me a high dopamine recovery. So my willpower regenerates quicker than it normally does, which is rather impressive I might say. Then I have ashwaganda for anxiety and some other stack supplements. I've been potentially exploring other stimulants but I'm working with a therapist to manage my paranoia and anxiety. He says he's surprised I'm still a sane individual. I'm still sane because I DON'T BACK DOWN, I SEIZE THE MOMENT. I use a bit of everything, just look up the stacks on the forum. If your SKT, then barkley theorized a  potential nonerenephrine, which is responsible with alterness and focus  along with a beta-blocker to deal with anxiety, might be useful. If you wish to be a zombie and not enjoy your life then go right ahead. I use it only for emergencies or when I absolutely have to use it. My new copying-mechanisms were developed with medication and have worked very well for me. You should get your blood tested, vision tested,get tested for allergies, ect. I'm getting gene therapy and my genes tested also.Goodluck.

[Breakthrough]

I’m glad the Concerta is working for you. I didn’t have much success years ago when I tried it and have since tried avoiding meds but at this point I just need a solution by any means. The only adhd meds I haven’t tried are non-stims like Strattera, which I’m curious about but dread the side effects of. I’m willing to explore everything from antibiotics, to Alzheimer’s meds, and gene therapy (which I can’t find much info or options on).
I’m glad the Concerta is working for you. I didn’t have much success years ago when I tried it and have since tried avoiding meds but at this point I just need a solution by any means. The only adhd meds I haven’t tried are non-stims like Strattera, which I’m curious about but dread the side effects of. I’m willing to explore everything from antibiotics, to Alzheimer’s meds, and gene therapy (which I can’t find much info or options on).

[MichaelFocus22]

 You need to realize, I barely even use concerta anymore, it's long lost it's tolerance. If you continue to  chase chemicals you will fail. Best recommendation for what's helped a good vitamin B complex and a high EPA and DHA omega 3. What I used cost 80$ dollars, one teaspoon has 900% DHA concentration which is higher than the dosage that they use in the studies. I'm telling you, if you continue to chase chemicals you won't have a happy life. When I was on medication I could GET NO JOY, from my life. If you get no joy, then it's pointless. Trust me on this, concerta is only a tool and nothing more, it's not something you need to depend on. If you wish to pursue more, then like I said do straterra and a beta-blocker. Straterra takes about 6 weeks to build up. You will only realize the devastation chemicals will have caused your life, once you see what you become. Your relationships will wither like dead flowers, it's a horrible thing to see. I assure you. Good luck.

[Breakthrough]

My main motivation for finding something to improve my state is to save my relationships.