11 replies to this topic

[Destiny's Equation]

Today I was at work putting twisty ties on cell phone cords when suddenly a staff member started driving a diesel-powered forklift inside the building!

My airway constricted. I went outside.

2 staff members came out to ask me why I ran out all of a sudden, and I explained. They were understanding. Then another one came out and asked...when I explained she said I was just being silly

I had left my inhaler at my mom's house. (Not that I would have used it anyway. It always exascerbates the constriction.) So I hung around waiting for the bus to pick me up, rode all the way home (several hour trip), walked to the grocery store to buy ginger. When I ate the ginger immediately the constriction ended (just chewing the ginger released the vapor). Despite my lungs being back to flexible again they still made weird hissing sounds if I inhaled rapidly.

Well the problems were not over. Then the confusion set in. My mind clouded over, I felt creepy. Wanting to nip it in the bud before the neurotoxic effects got ugly, I downed psyllium pills for detox. Hopefully that will kick in.

Sure hope this doesn't get ugly, going into a building where the bathroom had been disinfected with citrace was the day my neuropathy/encephalopathy hell first started, the day my life changed forever. At least this time I had the psyllium on hand, knew what to do right away.

So I am not going to go to work on Tuesday. (Seeing neuro on Wednesday, will talk to him about this. Hopefully he will advocate for me, when I told my mother about today she just laughed and said cheerfully "Well now you know to always keep ginger in your purse!" As always she thinks my lung problem is FUNNY. It's not.)

Forgive me if my writing is all mixed up, I am too.

[Ben]

Hmm, there may have been some acute effec,t depending on how large the warehouse is, but then, you have to mindful of whether some of your symptoms are psychosoma.

I remember reading something about diesel fumes: apparently contain nano sized particles which are thought to accumulate in the brain and very gradually reduce IQ. A forklift, unlike a car, would probably have a very basic exhaust filter--if any at all--so you would be getting arguably a high dose if the room you were both in wasn't large or ventilated enough.

I'd look into that further, but also, don't be too worried about it. If I remember correctly, it was a minute effect that took decades to develop into significance.

[Destiny's Equation]

A healthy individual would not develop these symptoms, but my system is horribly screwed up to begin with:

underlying medical condition

[The Immortalist]

Today I was at work putting twisty ties on cell phone cords when suddenly a staff member started driving a diesel-powered forklift inside the building!

My airway constricted. I went outside.

2 staff members came out to ask me why I ran out all of a sudden, and I explained. They were understanding. Then another one came out and asked...when I explained she said I was just being silly

I had left my inhaler at my mom's house. (Not that I would have used it anyway. It always exascerbates the constriction.) So I hung around waiting for the bus to pick me up, rode all the way home (several hour trip), walked to the grocery store to buy ginger. When I ate the ginger immediately the constriction ended (just chewing the ginger released the vapor). Despite my lungs being back to flexible again they still made weird hissing sounds if I inhaled rapidly.

Well the problems were not over. Then the confusion set in. My mind clouded over, I felt creepy. Wanting to nip it in the bud before the neurotoxic effects got ugly, I downed psyllium pills for detox. Hopefully that will kick in.

Sure hope this doesn't get ugly, going into a building where the bathroom had been disinfected with citrace was the day my neuropathy/encephalopathy hell first started, the day my life changed forever. At least this time I had the psyllium on hand, knew what to do right away.

So I am not going to go to work on Tuesday. (Seeing neuro on Wednesday, will talk to him about this. Hopefully he will advocate for me, when I told my mother about today she just laughed and said cheerfully "Well now you know to always keep ginger in your purse!" As always she thinks my lung problem is FUNNY. It's not.)

Forgive me if my writing is all mixed up, I am too.

Cool story brah.

Edited by The Immortalist, 22 April 2011 - 08:26 PM.

[Ben]

(there was a graphic here.)

Edited by Ben, 24 April 2011 - 03:01 PM.

[niner]

Destiny, that sounds like an asthma attack. Some people could get triggered by hydrocarbons. Your mom thinks it's funny? I hope you're misinterpreting her feelings and she isn't really that clueless. What kind of inhaler do you use? A steroid? Albuterol? Albuterol's what you needed there; things like steroids wouldn't help with the bronchoconstriction you had. Using a diesel indoors is idiotic, and probably illegal.

[Destiny's Equation]

Thank you for your reply Niner

Destiny, that sounds like an asthma attack. Some people could get triggered by hydrocarbons.

What kind of inhaler do you use? A steroid? Albuterol? Albuterol's what you needed there; things like steroids wouldn't help with the bronchoconstriction you had.

Great news. I finally got my hands on a formal diagnosis (reactive airway disease) and some albuterol.

My last doctor was too dumb to figure it out. (This was the same quack I wrote about in the "need advice from someone with social skills" thread.) I've been wanting a second opinion for the last 10 years, but my family has the purse strings, so they get to decide what medical care I do and don't get.

Your mom thinks it's funny? I hope you're misinterpreting her feelings and she isn't really that clueless.

Those who know my situation in detail agree that my mother is a confused individual.

Using a diesel indoors is idiotic, and probably illegal.

Turns out it was LP gas not diesel. But whatever it was, what it did to me was not good!

But anyway, it's ok now. My new doctor is my advocate, any time I have a problem with anyone he immediately gives them a phone call and explains things to them (they listen to his statements but dismiss mine, apparently most people are swayed by ad hominem bullcrap. But if it works...)

[Destiny's Equation]

Cool story brah.

(there was a graphic here.)

(Senses the lack of sensitivity in this place)

(Decides to take my frustrated rants and raves elsewhere from now on)

[Ben]

Sorry brosef.

Great news re. the diagnosis. You seem to have been lucky enough to find a great doctor too. It's no mean feat as you probably already know.

[Destiny's Equation]

Great news re. the diagnosis.

Thanks

You seem to have been lucky enough to find a great doctor too. It's no mean feat as you probably already know.

Perhaps we should start a "bad doctor stories" thread. If nothing else, it would make for some good entertainment.

Edited by Destiny's Equation, 19 May 2011 - 02:14 AM.

[Destiny's Equation]

It’s been a while so I thought I’d update.

I informed my vocational rehabilitation consultant that according to disability laws I am entitled to a $1,500 air purifier at the department's expense. (There was no other way to get the fumes out of the room- it had tiny windows.)

He has since moved to another county

At the moment I am waiting for my neurologist to write a letter to my new team while staying home from work.

[Destiny's Equation]

So I met with my new vocational rehabilitation consultant, and explained to her that because of my disability I am unable to do factory work. She replied: "No problem. I'll switch you to a different center."

Then, 2 weeks later, she calls me: "I spoke to my supervisor and she says that you need to stay at (the center with the factory work). So start going back there."

"My doctors say that I cannot do factory work unless they provide protective equipment to minimize chemical exposure."

"My supervisor says that if you have psychological issues when it comes to chemicals then the (factory) would be good for you. You belong at the (factory)".

*grumbles*

Why would a consultant send an encephalopathy victim off to a chemical-ridden center when there are plenty of other centers, you ask? A disability expert recently explained to me that these people do not have their clients' best interests at heart. That particular chapter is under contract with the center with the factory work; I was injured for kickbacks.

Going to the toxicologist next week; unlike my current doctors they will have a legal background as well as a medical one.