98 replies to this topic

[Majoreu]

Hi 6ort,

Im quite interested in your condition pls.
I want to know how you feel now, what are u doing to treat now.
I want you to also know that u are not alone

[PeaceAndProsperity]

tl;dr what worked for me was magnesium in high dosages.

[abc_123_z]

Hi 6ort, and all who posted.

 

I don't know if any of you still check this thread, but I am desperate - so I will give it a try. Do you have any news on your condition? Has your situation improved? The symptoms you describe are exactly the same as I have been feeling for the last two years, and it's making my life hell. This constant feeling - or pounding - in my chest, these adrenaline like symptoms. 

 

 

[6ort]

Not rid of the problem entirely, but the severity has dropped from 8/10 to 3/10 in the past 2 years. I am definitely better because I am now working a regular job which I would not be able to do if I was still fvcked up like I used to be in 2013, 2014...

 

My opinion on what this is: a complex imbalance of hormones and neurosteroids that affect the nervous system. The starting point is hypothyroidism -> low androgens & neurosteroids -> causes anxiety and overloads the nervous system with excitatory signals, your CNS and autonomic nervous system loses homeostasis and enters into some kind of chronic shock mode.

 

Things that help:

• Sleeping very warm (Steve Richfield temperature protocol)
• Using red light therapy to treat the hypothyroidism that caused this in the first place
• Coffee (yes!) by increasing progesterone and pregnenolone this helps balance the nervous tone
• Keeping estrogen at low-normal levels and avoiding too high fat

 

Ultimately this needs to be fixed by curing the hypothyroidism (completely) - and NOT by taking thyroid pills - that does not work. Red light to stimulate & regenerate thyroid cells, iodine & selenium to cleanse the thyroid of garbage and Steve Richfield protocol to override the hypothalamus to accept a normal body temperature will help ensure that your body starts working in the right direction.

I bought a red light device just today, the Infrared Light Device Mini (from Redlightman.com) for red light therapy. The halogen one I have right now works too but is not ideal.

Edited by 6ort, 11 September 2017 - 07:58 PM.

[abc_123_z]

Hey 6ort,

 

Glad to hear that you are doing netter, from an 8 to a 3 definitely seems like the right direction. 

This - whatever it is - has really done some awful things to my life, and I wish it would leave as easily as it came on.. but I think the chances of that are pretty bleak...

 

How is it going with the red light device? I'd be very interested in hearing more about how you progressed overall, and over the last few years.

 

Yours,

A person in need

[6ort]

Hey 6ort,

 

Glad to hear that you are doing netter, from an 8 to a 3 definitely seems like the right direction. 

This - whatever it is - has really done some awful things to my life, and I wish it would leave as easily as it came on.. but I think the chances of that are pretty bleak...

 

How is it going with the red light device? I'd be very interested in hearing more about how you progressed overall, and over the last few years.

 

Yours,

A person in need

 

The Infrared Light Mini that I bought seemed to work, but it seemed less effective than the halogen lamp that I used prior to that, which was disappointing.

I am going to try the Red Light Mini which only has visible red light and no infrared - supposedly people have better results with that.

 

The main problem that I'm seeing with all of these therapies is that, even though they are life-saving, they also seem to be temporary. They help me feel better but the moment I slip up and stop putting in the effort to sleep in double layer clothing, or skip a few days of the light therapy, my condition starts to worsen: I lose energy, become more introverted, develop anxious thought patterns, nervous system seems more unstable, etc. And it's usually a dreadful feeling. So I make sure to keep it up.

 

I guess what's disappointing is that none of these things seem to elicit any kind of permanent cure. I was hoping the light therapy could stimulate some kind of regeneration, but maybe it needs a particular kind of light, or a particular frequency. Or maybe I need something completely different.

 

The bottom line is that I know the majority of my symptoms come from a dysfunctional thyroid, or a dysfunctional endocrine system in general, but I don't know whether the thyroid gland is damaged and needs to regenerate, or if the higher glands controlling it (the pituitary and hypothalamus) are the problem. Wide systemic issues like this are very hard to troubleshoot, and the best thing you can do is follow the way you feel, so you end up having to constantly experiment with new things to see if you can reach "the next level" of well being, and sadly sometimes this means you go 1 step forward and 2 steps back.

 

If you are interested in anything particular feel free to ask me via PM.

[abc_123_z]

6ort, I PM'd you. 

[HyperDown]

6ort,

 

Sorry to bump the old thread.  I'm wondering if you are still having success with the

 

"Things that help:

• Sleeping very warm (Steve Richfield temperature protocol)
• Using red light therapy to treat the hypothyroidism that caused this in the first place
• Coffee (yes!) by increasing progesterone and pregnenolone this helps balance the nervous tone
• Keeping estrogen at low-normal levels and avoiding too high fat"

I've been having similar symptoms (normal heart rate and pressure, but nearly constant 'pounding'.)  I've also got low body temp, which makes me think maybe Richfield is on to something.

[6ort]

6ort,

 

Sorry to bump the old thread.  I'm wondering if you are still having success with the

 

"Things that help:

• Sleeping very warm (Steve Richfield temperature protocol)
• Using red light therapy to treat the hypothyroidism that caused this in the first place
• Coffee (yes!) by increasing progesterone and pregnenolone this helps balance the nervous tone
• Keeping estrogen at low-normal levels and avoiding too high fat"

I've been having similar symptoms (normal heart rate and pressure, but nearly constant 'pounding'.)  I've also got low body temp, which makes me think maybe Richfield is on to something.

 

Generally yes, those things still help, but I have some new findings on this condition.

For about a year since 2015-2016 I was taking Propecia for hair loss. After I quit this drug I developed persistent side effects (PFS) - horrible drug, never take this. It causes permanent alterations in enzymes and hormone levels.

 

But anyway after I got off that drug in late 2016, my heart palpitations and anxiety lowered greatly and I thought I was just getting better. No, this was the only positive consequence of being on Propecia, and I found this out about a month ago because now I am fighting against brain fog and sexual dysfunction caused by Propecia. I tried taking Creatine which is well known to increase DHT levels. Well guess what... my heart palpitations, adrenaline rushes and anxiety attacks came back with a vengeance a few days later. It was every bit as bad as before. I couldn't function normally again - it took me 2 weeks since quitting creatine for things to go halfway back to normal because creatine can last up to a month in the body.

 

Now why would increasing DHT (or restoring it to normal levels) cause such horrible issues? Only two things comes to mind: being borderline hypogonadal, low T & E in the brain will cause anxiety and such issues. If 5-AR is upregulated, overconversion to DHT (and resultant negative feedback suppression of T & E synthesis) causes even worse hypogonadism especially in the brain and this results in severe nervous instability, because in some shape a proper balance of sex hormones in the brain is required to function normally as a male.

 

The other option is that the restoration of 5-AR activity and increase in synthesis of downstream neurosteroids results in nervous excitation which for some reason cause an overactive sympathetic nervous system, but I think this is less likely because allopregnanolone and other 5-AR reduced neurosteroids are generally anxiolytic and GABAergic...

 

But basically it is some kind of hormonal issue for sure. I've gone back to 'normal' and not touching creatine again. I think the right course of action is to focus on increasing testosterone and thyroid as usual. But fixing thyroid issue is so hard and slow that it's almost impossible. Nevertheless I made some progress judging by my labs this year.