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What a horrible disease. Fatal Familia Ins...

John250's Photo John250 30 Jul 2018

This poor guy

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YOLF's Photo YOLF 31 Jul 2018

Torturous... His last video was a year ago, is he still alive? I'd take a crack at this if he has a 23andMe genotype.

 

Some interesting information here:

https://www.ncbi.nlm...les/PMC5771322/

 

Seems damage occurs near or around the same areas as it does in parkinson's disease and ALZ. 


Edited by YOLF, 31 July 2018 - 09:07 PM.
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John250's Photo John250 31 Jul 2018

Torturous... His last video was a year ago, is he still alive? I'd take a crack at this if he has a 23andMe genotype.

Some interesting information here:
https://www.ncbi.nlm...les/PMC5771322/

Seems damage occurs near or around the same areas as it does in parkinson's disease and ALZ.


He died. I think he made it 2 years. I’m trying to find the article.
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ortcloud's Photo ortcloud 22 Aug 2018

The guy was taking 13 grams of fluoride! I guess this is what caused his insomnia and death. I wonder what doctor told him to take a bunch of fluoride and a antibiotic

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OP2040's Photo OP2040 22 Aug 2018

The guy was taking 13 grams of fluoride! I guess this is what caused his insomnia and death. I wonder what doctor told him to take a bunch of fluoride and a antibiotic

 

You have just hit upon a huge pet peeve of mine, so I apologize in advance if this sounds harsh.

 

FFI is a genetic disease with very high, if not 100% penetrance.  His intake of Fluoride or antibiotics has nothing to do with the disease whatsoever.

 

People, especially people on this forum, need to be more compassionate.  We actually control a lot less of our health status than we think, yet the idea here is that if we just do enough interventions, or just take the exact right medical advice everything will be ok.  That's simply not true at all.  Doing all the right things according to the latest guidelines probably lowers your risk and raises your life expectancy only very minimally.  And the latest interventions we all try are just experimental, and may end up doing nothing.

 

Nature sucks and we are programmed to suffer and die, some at a little slower rate than others, and others based on completely random luck of the draw.  There is no room for "...well, if that idiot only did or did not do this, he would be ok"  No room at all. 

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John250's Photo John250 22 Aug 2018

You have just hit upon a huge pet peeve of mine, so I apologize in advance if this sounds harsh.

FFI is a genetic disease with very high, if not 100% penetrance. His intake of Fluoride or antibiotics has nothing to do with the disease whatsoever.

People, especially people on this forum, need to be more compassionate. We actually control a lot less of our health status than we think, yet the idea here is that if we just do enough interventions, or just take the exact right medical advice everything will be ok. That's simply not true at all. Doing all the right things according to the latest guidelines probably lowers your risk and raises your life expectancy only very minimally. And the latest interventions we all try are just experimental, and may end up doing nothing.

Nature sucks and we are programmed to suffer and die, some at a little slower rate than others, and others based on completely random luck of the draw. There is no room for "...well, if that idiot only did or did not do this, he would be ok" No room at all.


Is the disease just latent and something needs to bring it on? Like the antibiotic in this guys case?
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OP2040's Photo OP2040 22 Aug 2018

John250,

It is latent in the sense that age of onset is not until you are older.  But, much like Huntington's, if you got the right gene (forget if you need two copies or one),  then you are going to get it no matter what. 

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ortcloud's Photo ortcloud 22 Aug 2018

This is not Fatal Familial Insomnia

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