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How to reduce a continual facial tingling from PTSD


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#1 cclemon

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Posted 24 December 2006 - 01:58 PM


Hi.Im in mid20. I have been suffering from complex PTSD that was diagnosed by a counsellor at my university.
My history of PTSD
Two years of severe bullying at a junior high->Social withdrawal and unusual startle response for everything ->facial tingling accompanied by a minor mood swing.

I believe that my brain has shrunken especially in limbic area (Hippocampus) and has inflammated amygdalas from several years of being in a fight/flight response (increased cortisl damages brains). Some medical journal found that a shrunken hippocampus size is positively correlated to symptoms. I strongly believe taking medicines like Tianeptine/SSRI for atleast 2 years will help repair hippocampus size as is my facial tinglings. SSRI causes erections prob so it is nono. I am going to take Tianeptine and hope this would help. I need your opinion as to how to reduce neuropathic pains from ptsd. Will normalising hippocampus size from taking stablon help to reduce physical symptoms like I have?
[huh]

#2 jubai

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Posted 24 December 2006 - 04:03 PM

do you get any kind of redness associated with the tingling?

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#3 cclemon

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Posted 25 December 2006 - 03:25 AM

not really! why?

#4 stephenszpak

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Posted 25 December 2006 - 03:49 AM

I had heard of a case of what I guess was PTSD (though it wasn't called that then)
during World War I (?) Anyway if I remember correctly a British soldier
bayoneted a German soldier in the face. The British soldier had uncontrolable
facial grimmaces (or whatever the medical term is) because of what he did.

I'm just trying to relate PTSD with the tingling. If it can be. Not being famililar
with PTSD I'm just groping in the dark.

I hope you have talked to a real doctor (medical) about the "tinglings".

-Stephen

#5 graatch

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Posted 26 December 2006 - 04:23 PM

Careful with SSRIs: much safer ways out there to improve neurotrophic factors IMO; like aerobic exercise and meditation.

#6 Jacovis

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Posted 23 May 2009 - 04:40 AM

A recent pilot study of D-Serine for the treatment of PTSD...

1: Int J Neuropsychopharmacol. 2009 Apr 15:1-8. [Epub ahead of print] Links
Pilot controlled trial of d-serine for the treatment of post-traumatic stress disorder.

Heresco-Levy U, Vass A, Bloch B, Wolosker H, Dumin E, Balan L, Deutsch L, Kremer I.
Psychiatry and Research Departments, Ezrath Nashim-Herzog Memorial Hospital, Jerusalem, Israel.
Enhancement of neurotransmission mediated at N-methyl-d-aspartate subtype of glutamate receptors (NMDAR) may be beneficial in post-traumatic stress disorder (PTSD). d-serine (DSR) is an endogenous full agonist at the NMDAR-associated glycine modulatory site. Twenty-two chronic PTSD outpatients were randomly assigned to participate in a 6-wk double-blind, placebo-controlled, crossover trial with 30 mg/kg.d DSR used as monotherapy or add-on pharmacotherapy. Outcome was assessed using the Clinician-Administered PTSD scale (CAPS), Hamilton Anxiety (HAMA) and Depression (HAMD) scales and the civilian version of the Mississippi Scale for Combat-Related PTSD (MISS). DSR treatment was well tolerated and resulted in significantly (p=0.03) increased DSR serum levels. Compared with placebo administration, DSR treatment resulted in significantly reduced HAMA (p=0.007) and MISS (p=0.001) scores and a trend (p=0.07) towards improved CAPS total scores. These preliminary findings indicate that NMDAR glycine site-based pharmacotherapy may be effective in PTSD and warrant larger-sized clinical trials with optimized DSR dosages.
PMID: 19366490 [PubMed - as supplied by publisher]

#7 Jacovis

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Posted 23 May 2009 - 05:51 AM

Based on the below reports, Stuart Tessler's Fight and Flight Therapy looks to be one to try for PTSD. He is Denver, Colorado based so regular trips there may be required to do the therapy properly...

http://www.denvernur...e...&newsid=433
LIGHT THERAPY OFFERS ALTERNATIVE HEALING

by Mary Jo Fay

From the healing powers of the sun, to the high-tech light energy of the laser, light has made its way into patient care from many directions.

New light therapies can provide help for physiological, emotional, and stress-related issues. Light boxes are available to help those suffering from Seasonal Affective Disorder, or winter depression. Another new light therapy is producing dramatic results for: 1) those with a history of stress and/or trauma, and 2) people who would like to reduce stress, improve their concentration and mental performance, or just function more effectively in their busy lives.

For some, the daily stresses of life are overwhelming but that doesn’t mean they need Prozac or a therapist. They are simply searching for a natural way to balance their lives. That’s where this new light therapy provides a unique alternative.

Dr. M. Stuart Tessler of Denver is the only fellowship-certified practitioner in Colorado offering this unique therapy to his patients. During his 20 years as an optometrist, Tessler noticed that when using light therapy for specific eye or vision disorders, many reported secondary benefits that went far beyond their eyes or vision. Patients were becoming more relaxed, less stressed, and handled new stress better. They seemed more open, receptive, and capable of change.

"The amazing thing is that many patients often reported changes that neither of us ever anticipated," he says. One woman, who had been unsuccessful at losing weight for years, suddenly started shedding pounds. Another who had struggled to gain weight suddenly did so. Many described feeling less stress and anxiety in their workplace. Even high-functioning people reported greater productivity and satisfaction.

How does this light therapy work? Our minds and bodies respond to physical or mental-emotional stress in precise physiological ways. The nervous system automatically activates defensive reflexes designed to protect us, helping to insure our safety and survival. Typically, our system returns to normal after a challenge has passed. Yet, sometimes, the body remains "stuck" in survival mode, leaving us functioning less efficiently, creating a subconscious resistance to change, and ultimately limiting our options, resources and mindset.

After an initial evaluation, patients are given a simple light device to use in the comfort of their own homes, at their own pace. Specific wavelengths of light are directed gently and comfortably into the eyes, measurably shifting aspects of the "flight or fight" response back toward normal. Whether it’s traumas that occurred long ago, or simply the pressures of daily jobs and busy lives, light therapy acts "like a tune-up", helping people function more easily, less stressfully, and more to their potential.

For those who do not feel comfortable talking about their personal issues with a therapist, light therapy allows them to maintain their safety and privacy. This therapy is not about bringing up painful memories, or even discussing what’s on one’s mind. It works at a physiological level to reset the nervous system.

As Tessler summarizes, "to whatever degree someone is stuck in ‘fight or flight’ their nervous system must, by necessity, expend energy and resources to maintain the safety of the status quo. In a complex demanding world, this limits their options and depletes the resources they need to deal with the rigors of everyday life. By resetting those nervous systems, lives can change in a multitude of ways.

As one patient, a 42 year-old single mother and administrator, aptly put it, "I seem to be glowing. I’m functioning easier and better in my world. I am less stressed and handling new stress better. ‘Overwhelm’ is a thing of the past!"

For more information, Dr. Tessler may be reached at 303-744-6508.



http://neurotalk.psy...95520#post95520
PCS McGee (05-05-2007):
"Peoples champ:

I myself have been suffering from post concussive symptoms for an extremely long time; I won't get into the details of my particular situation, but I've tried a lot of different things to bring "the old me" back, and have found a few things that have helped a lot, though I haven't found the key to bringing my life back to whole just yet.

Regardless, I know what it's like to be in your situation, and I know how horrible and frightening it can be, so I figured I'd tell you about the things that have worked for me... if I'd found them closer to my time of initial impact, I might not still be in the tough spot that I am now (unless it causes the brain to heal properly, time does not make brain injury problems easier to deal with).

One thing you might want to look into is a kind of light/eye therapy called syntonics, which can be very effective in getting the nervous system (your brain is a big part of this) to calm down, allowing for more healing to take place. This stuff doesn't work for everyone, but it can be extremely helpful and it's certainly worth looking into, just make sure any practitioner you're calling knows exactly what your situation is.

Another thing that you could look into (and I STRONGLY recommend this stuff from personal experience) is called craniosacral therapy; it's a type of physical therapy that uses really subtle massage to move the plates of your skull and allow for your brain to heal itself. Once again, this isn't a sure fire thing, but it can be extremely helpful. This therapy has been effective for me in bringing me back to reality, restoring my memory, and reestablishing much of my former cognitive abilities. If you want to pursue this stuff, try to find someone who has a ton of experience in working with head injuries, because with this kind of physical therapy there's a BIG difference between someone who's been practicing for 5 years and someone who's been practicing for 20 years.

I hope this helps you a bit. Keep pushing through your days, even when they don't seem to make very much sense, because you have the capacity to get back to where you used to be, it may just take some time and work to get there."

http://neurotalk.psy...0761#post120761
PCS McGee (07-06-2007):
"Yep...
People's champ: A while back you said that you were exhibiting symptoms of PTSD as much or more than you're exhibiting symptoms of PCS, which makes sense to me. There's a lot of debate over why some people recover from head injuries as they'd be expected to (only showing symptoms of the trauma for a couple of days to a month or so) and others develop PCS that can last for months or longer after the incident. A lot of very well informed doctors believe that the reason some people take so long to heal, or don't seem to heal at all, is because they suffer from PTSD as well.

I've had post concussion syndrome and PTSD stemming from a cruelly and utterly random event for a long time now, over 4 years in fact (don't let this scare you, I am an EXTREMELY rare case, you won't take this long to heal), but I will tell you that I've experienced more healing of my injuries in the past 6 months than I experienced in the 3.5 years that came before, so please have faith in the fact that there is no point along your healing process that your injuries truly become permanent (conventional medical thought says that brain injuries are permanent if they haven't healed within a year, but my short term memory was completely shot for 45 months straight before it came back, and it's stayed back - I just found the right therapy for me). The key is to find therapy that works for you; for me cranio sacral therapy has worked by far the best, though I did some light therapy a while back that was very helpful as well (I talked about this on a previous post). I would strongly suggest that you not just "wait" to get better, as there are forms of therapy out there that could help you heal better and faster. If I had seen the cranio-sacral therapist that I'm seeing now 4 years ago I honestly feel that I would have recovered in no time flat, but instead I took my doctor's half-hearted advice and just slept as much as I could, each night going to bed wishing (and to a certain degree expecting) to wake up the next morning feeling completely fine. That never happened. I finally broke down entirely about 2 years ago, at which point I started seeing a couple of therapists and went on medication for my "anxiety disorder" as the psychiatrist put it, but it was really just misdiagnosed PTSD. 2 months later it was obvious to me that the medication was doing nothing and the therapy was actually helping, so I weened myself off of my medication and stuck to therapy; it's been very hard at times, but I haven't looked back since.

So the point of the story is this: You might have post traumatic stress disorder, and if you feel like it's the right thing to do you may be well advised to seek therapy to help this out. It may sound odd to think of what you experienced during a football game as something that would trigger PTSD, because usually we think of PTSD as something that forms when someone sees a bunch of people get killed (a la your classic Vietnam veteran PTSD case), but people develop PTSD every hour of every day from car accidents and other random physical traumas. Think about a car accident for what it really is: An unexpected violent hit that the body takes, and you can see there's not as much difference between a car accident and a football collision as you might think.

Obviously, I'm not a doctor, so take my advice at face value, but I have been researching and fighting this syndrome for a long time now, so I know a thing or two about it. For your sake, I hope that you wake up tomorrow and everything's back to normal, but if it's not you might want to think about seeking out help in healing, rather than just waiting for healing to come to you. Keep punchin' man, you'll get through this."

http://neurotalk.psy...1838#post121838
PCS McGee (07-09-2007):
"...I hope this work can help you as much as it's helped me, but be open to any suggestions she may have for you. These therapists usually "travel in packs", in the sense that they usually have a solid network of other therapists whose work compliments the work that they do. For instance, I did light therapy with the cranio sacral stuff, and I doubt either one of them would have been as effective without the presence of the other... so yeah, she may say "from what you've told me, I think you should actually see Dr. ____ before you see me", or she may say "well, let's see what we can do for you." Just be prepared for that.

Best of luck."

http://neurotalk.psy...2168#post122168
PCS McGee (07-10-2007):
"I like that 10,000 wishes quote... I might save that one. Well put.

Let's see, over the course of my run with this stuff I've done chiropractic (didn't work), accupuncture (occasionally helped, but the effects seemed pretty temporary, though my accupuncturist was not all that good), some weird physical therapy called "matrix repatterning" (worked a little, but not much), somatic/gestalt therapy (helped a bit with anxiety, but not much else), anti-depressants (didn't help at all), hypnotism (caused me to have a complete breakdown the first time I did it, but now I'm doing it again and it's doing GREAT things), cranio-sacral therapy/bodywork (has done absolute wonders for me), and a kind of light therapy that my practitioner calls "fight or flight therapy" (basically ended my pronounced panic attacks, and I believe made the cranio-sacral therapy and hypnotism therapies far more effective than they would have been on their own).

There are a couple of other therapies that I am investigating right now in case the stuff I'm currently doing doesn't completely get rid of my ills... there's a new kind of brain wave therapy called Brain State Technologies that an old therapist of mine is using (he claims to be getting really positive results from car accident people, which is the group that most PCS people can be lumped in with as far as general traumatized people go). Also, my light therapy guy recommended something called Eyelights, which are these glasses that you wear for half an hour a day or something that flash lights in front of your eyes and have the end effect of exercising your brain. That same light therapy guy is also treating people with this new kind of supplement therapy, that apparently is the first attempt by medical science to treat people's problems using the principles of quantum physics... it sounds really interesting, but I don't think I'll try that one unless I've got nowhere else to go.

All that said though, I'm really close to being completely back online, I can feel it, and I seem to be getting better each and every week, so I think at some point I'll go in for therapy and realize afterwards that there's just nothing left to be fixed. That's gonna be a good day."

http://neurotalk.psy...7962#post127962
PCS McGee (07-24-2007):
"I did some light therapy a while back which was very helpful (as you're apparently aware). The stuff I did was called Fight or Flight therapy, and as far as I can understand it's sort of a subsidiary of syntonics that's focussed almost entirely on the nervous system (conventional syntonics was originally used just for treating vision problems, the positive psychological results people experienced from it were originally seen merely as a positive and unexpected side effect).

This light therapy helped me in many ways, most notably as a "jump" as you put it, to the other therapies I'd been doing. I'd been doing conventional therapy for my PCS and PTSD for almost a year and a half when I started light therapy, and although the conventional therapy had been effective enough to get me to a point where I didn't NEED medication anymore, I still felt like hell every second of every day, so I was in no way at a point that I was pleased with. The conventional therapies I'd been doing had also seemed to plateau, and little progress was being made, which is why I sought out the therapy in the first place. My therapists were skeptical of light therapy before I did it, but after just one week of the light therapy they were both astounded with how much more responsive my mind and body were to treatment.

At this point, about 10 months after I started light therapy, I'm still not completely cured, but I'm light years beyond where I was before I did it. I truly feel that a lot of the therapies that have really done wonders for me, in particular cranio sacral work, might not have worked at all had I not done the light therapy first. It really seemed to open up my nervous system and make it capable of receiving changes, whereas before it had been in this clenched up, unmovable, concrete state.

The only thing I can really point to and say "the light therapy was solely responsible for THIS happening" is that... and this sounds kind of weird... the light work made me able to cry again. Like I said, this sounds weird, but before I did the light therapy every day of my life since my accident was a total and unrelenting hell, and I was completely aware of this fact, and yet I was unable to cry over it (the only emotions I could produce were anger and fear). After doing the light therapy for a while, I was really able to get in touch with all of the sadness and other emotions that are tied into this event in my life, so that I could actually feel how truly upset my whole mind and body were, instead of just getting furious at the various activities that I could no longer do. This helped my therapy immeasurably.


I'm considering doing some more light therapy if the mix of stuff that I'm doing now (hypnosis and cranio sacral work) doesn't completely rid me of the residuals from my accident, but I haven't started researching it much just yet. EMDR is high on my list, but I've heard it can be pretty intense."

http://neurotalk.psy...ead33353-2.html
PCS McGee (12-07-2007):
"I wish you were in Colorado, there's a guy out here that does really amazing light therapy for PTSD (the therapy is of his own design, so it's not like EMDR that's done all over the country). Before I did his therapy, I was pretty much in a constant state of high anxiety and was experiencing 5-15 acute panic attacks a day, and of course not sleeping well at all. Afterwards, my anxiety was markedly lower, and the therapies I'd been doing for years suddenly started working really well.

Obviously I'm still not in a very good place, but my life is astronomically easier than it was before I did the stuff.

If you want to check out his hideous website it's at www.fightorflighttherapy.com, but I reiterate, the website is U-G-L-Y! If it really strikes a chord with you, he does see people from out of town pretty regularly. Just thought I'd throw this into the therapy options pot for you folks.
"

http://neurotalk.psy...7188#post177188
PCS McGee (12-16-2007):
"...Yeah, you go in to see the guy and get your therapy recalibrated once every month or so, but the rest of the therapy is done at your house (it just involves staring at a light, having to go somewhere to do it wouldn't make a whole lot of sense)."

http://neurotalk.psy...4315#post464315
PCS McGee (02-11-2009):
"...Well, I've come to learn that I'm exceptionally sensitive to all sorts of allergens/toxins (I'm working on this with a specialist currently) so it was A LOT of foods. Basically, the diet that I was told to adopt then (and still have now, with few notable additions) allowed for no dairy, no grains, no unnatural sugars, no normal potatoes, no corn, no soy, no fruits other than apples or grapefruit. Basically I could eat beans, sweet potatoes, vegetables, and apples. A tough transition to make, but it worked for me so I'm not complaining.

I have other conditions that have always been there but went undiagnosed until recently though. I've got a thyroid condition, and my adrenals were under performing, and I was deficient in vitamin D, and I'm sure I'll find all sorts of other stuff in the coming months that I need to work on as well. Really, prior to my injury it's pretty clear that I was a walking house of cards, I just had no idea that was the case until the whole thing came tumbling down.

Along with these findings, I did some light therapy that was abundantly helpful (I'd recommend that stuff above all else, though the only doctor who does it is in Colorado), as well as some craniosacral therapy that really helped out (I sincerely doubt this would have been notably effective without the light therapy coming beforehand), and some other stuff as well that's helped put the bits, pieces, and massive chunks back together. Like I said, I'm not all the way there yet, but I'm much more there than where I was before, and that's enough to get my life moving again.

As far as "what it's like", or "what I'm like" is concerned... the best way I can put it is this: When you're in that PCS mode, or at least when I was really in PCS mode, you experience the world through your injury. You're in this trauma-centric universe, where any time you're looking at something or thinking about something or talking to someone you're always also thinking about what's going on in your head. It's like everything you do, see, and experience comes with a side order of "what the hell is going on? Why won't this stop?" It might not be a side order even, for me that was often the main course.

That's the main thing that's gone away for me. Sure, I still think about my brain a lot, but my brain isn't my whole life. I can have conversations with people and actually think about what they're saying, make a connection with them on some level, as opposed to just watching them talk like I'm watching a tv show. I wouldn't say that I feel like a different person now per se... it's more that now I feel like an actual person, whereas before I often felt just hollow. Like I wasn't even real."

http://neurotalk.psy...ight#post464957
PCS McGee (02-12-2009):
"...Yes, Post Traumatic Stress Disorder was definitely a key contributing factor to my brain not healing properly when I originally had my injury. A lot of people seem to think that only combat veterans and rape victims get PTSD, but people get it every day from car accidents, falls, and all sorts of other stuff.

I used Xanax for a while as a sleep aid. It was very helpful to that end, but you have to be VERY careful when using Xanax as it's an extremely powerful drug and one of the most addictive prescription drugs on the market. You can very quickly go from "using xanax when I can't sleep" to "not being able to sleep without xanax" if you're not careful. It's no surprise that it lowers your symptoms though, that stuff taps into a part of your brain that tends to make people feel like they're getting a backrub from Jesus, at least for a little while. The only real problem I had with the stuff is that once the drug would wear off I'd become extremely irritable, sort of like someone coming down from heroin or crack or something.

Anyway, if you don't mind my asking where are you located? There is a man in Denver who has light therapy that is just PROFOUNDLY effective for Post Traumatic Stress Disorder. If you have any ability to see him I would recommend his services above all else."

http://neurotalk.psy...8403#post468403
PCS McGee (02-19-2009):
"This is an awesome project you've undertaken here. If you'll rummage through the past posts on this forum you'll see about 800 nearly identical "I hit my head and I don't know what to do" threads... it seems like everyone goes through the exact same procedure of escalating frustration, at least in the first few weeks following their injury, that is.

Things I've tried:

Accupuncture - I did this closest to the time of my original injury. It rarely accomplished anything terribly impressive, but one time (out of the probably 30 times I did it) I had some HUGE benefits come out of a session (significant expansion of peripheral vision, clearer thoughts, etc). Hard to evaluate how permanent those effects were, as I was living a pretty degenerative college-style life at that time, so any depreciation in results could have easily been explained by my continuing to (stupidly) ingest alcohol. I also did basic chiropractic and this other therapy called "Matrix Repatterning" at this same time, but those never reaped any benefits for me.

CTScan - Showed nothing. Other than knowing that there wasn't any visible damage to my brain mass, this did nothing for me.

Lexapro (SSRI/Anti-depressant) and Xanax - Had a nervous breakdown at one point, was put on these afterwards and took them for 3 months or so. They definitely helped in getting my brain to stop exploding (which was useful), but other than that the benefits were nil, so I weaned myself off of them shortly thereafter.

I did this light therapy which was EXTREMELY helpful. It's a therapy designed to alleviate the emotional residues of trauma, and I had pretty pronounced PTSD, so it helped with that end more than with the physical brain, but I am absolutely certain that the therapies I tried on my brain later wouldn't have been anywhere near as effective had I not done this therapy first. Bar none, I feel that this was the single most important element in getting me from where I was a couple of years ago (undeniably horrible) to where I am now (pretty good).

Craniosacral therapy - Did this following the light therapy for about a year (once a week). Really got my brain turned back on... extremely, EXTREMELY helpful. Chronic pain diminished significantly afterwards, and experienced marked improvements in memory.

I'm also on several supplements to help various parts of my endocrine system work properly. These have also been very helpful."

http://neurotalk.psy...2256#post472256
PCS McGee (02-27-2009):
"So your argument is "nothing works, so do whatever costs the least", right?

Honestly Mark, let's drop the cynicism a bit here. I tried many many physical therapy modalities that provided me with no notable results before I moved on to craniosacral work, so you can rest assured that the changes I experienced fell well outside the range of a placebo effect. Maybe craniosacral wouldn't do much for you, but it has done a whole hell of a lot of good for a whole hell of a lot of people, myself included. I would appreciate it if you didn't completely blow off that fact.

Meghan: Try whatever you want. If craniosacral work (or accupuncture, or light therapy, or a pill, or a vitamin, or chiropractic, or a diet change, or whatever else) makes you feel better, then stick with it. If it doesn't, then try something else. Just follow your heart on this stuff - if it feels right to you, then do it. If it doesn't, then don't. That's the best advise I can possibly provide."

http://neurotalk.psy...2267#post472267
PCS McGee (02-27-2009):
"...I believe that you're lumping in the light therapy that I did with a more common form of light therapy, EMDR. This is an (for lack of a better word) inappropriate comparison, as the light therapy that I did is nothing like EMDR in the slightest. In fact, it even says so right on the (admittedly poorly designed) website. Really, the only similarities between the two are that both are aimed at resolving trauma and both use lights to accomplish that goal. The types of lights that are used and the manner in which those lights are used is completely different, as are the intended results.

Personally, I would not recommend EMDR to anyone on this board unless they can find an EXTREMELY careful EMDR therapist. While EMDR can be effective in helping those dealing with psychological trauma, it can also easily overwhelm a vulnerable psyche (taking the problem from bad to worse). It is not at all uncommon to see people become re-traumatized from an overly aggressive session of EMDR therapy, and yes, I've heard of a risk of relapse with EMDR as well, though I really don't know enough about it to comment on that aspect of the therapy. While EMDR is one of the most effective forms of widely accepted PTSD therapy out there (noting the fact that there are barely any PTSD therapies available that could be called "widely accepted"), it's my opinion that there are far more effective therapies emerging at this time. The light therapy I did would be one of those.

Now, onto my question:

You claim that both craniosacral therapy and alkalized water produce the same placebo-level effects in clinical trials, but I'm wondering what objective measures were used to derive these rates of success. Allow me to elaborate:

Basically every single person on this board has the same story. "I hit my head, I have felt awful ever since. I have had every test in the book done on me, but doctors cannot find anything wrong with me. My life is hell, what do I do?"

Now let's say that one of these people with this common story goes to see a craniosacral therapist and a couple of months later all of the symptoms that they've been struggling with suddenly vanish. They "feel like themselves again." In the eyes of objective medical tests, what has that craniosacral therapy accomplished?

I suspect the clinical answer is "nothing." Absolutely nothing. Since the doctors were never able to locate an objective measure to define the patient's state of health, the work has netted no positive gains outside of some anecdotal evidence from the patient (and as we all know, patients can't be trusted to comment on their own condition).

What is obvious to me is that, especially in reference to the brain, modern medicine's ability to diagnose deficiencies, abnormalities, and damage in the body is woefully inadequate. There is no objective measure for "I feel like ****", nor is there a measure for a statement as nebulous as "I just don't feel like myself."

So here's my question again: How do these clinical trials account for these shortcomings in modern diagnostics?

I will be earnestly interested to hear your response."



http://angiecox.net/...g-a-difference/
Making a Difference
My Number Three child has made a significant contribution to my source of writing material. That is because she is such a gift to me in so many ways. She is wired much differently than her sisters. It’s not wrong or bad. It is just different, and it will most likely prove to serve her in ways that will make her highly successful.

Her uniqueness has allowed me to grow both personally and professionally. I am a better teacher because of her. I am a more flexible parent because of her. I recognize personality traits in others and am less quick to judge that person because of her. She is a gift not only to me, but to the entire world because of the lessons I have learned from her.

Her life is pretty blessed. She had a normal baby-hood. No traumas during pregnancy or birth. Everything was pretty much routine. Yet even as a toddler, her personality was much different than the previous two. She smacked her forehead on the coffee table at 2 1/2, which meant a trip to the emergency room and stitches, but she healed.

At four, we began to notice what the older girls called “the cross-eyed thing”. Every so often her right eye would do its own thing. I took her to an optometrist who diagnosed severe far-sightedness (like +5.0) and amblyopia. That was a difficult experience for my daughter because she was so painfully shy at that time she would not (and I now know she could not) respond to his questions as to which image was better. As a result, he used his magic lenses and a flashlight to focus the image on her retina to his satisfaction.

For the next few years, we did the coke-bottle lenses, then contacts at age six, and later back to glasses. All of these had traumatic effects on her. The prescription reduced some over the years, but was still pretty intense. All this time, as she fought having to wear anything, I would check her vision by having her read road signs. The kid could see close up, far off, and everywhere in between just fine. As a nearsighted person who needs correction to see two feet in front of my face, I had a real problem with this. Why would someone even need correction if they could see as well as she could?

That began my search for another answer. By that time, I had accumulated some BrainGym friends who I knew had contacts in the alternative medicine world. (No, BrainGym doesn’t necessarily equal alternative. It just happened to be my source for information.) They referred me to an optometrist in Denver who was doing some different types of therapies. His name is Dr. Stuart Tessler.

I contacted Dr. Tessler with my concerns. He wanted my daughter to see a behavioral optometrist before he saw her, so as to make sure we had all the basic vision issues assessed and addressed before moving forward. He gave me three possible locations, all of which are an eight hour drive from our house. I asked him who would be best able to work with my Number 3 child. Her differentness had by that time taken the form of frozen terror when faced with a stranger pumping her for the answer to the “which is better, one or two….one, two” question. I wasn’t interested in creating more trauma for her. He didn’t hesitate for even a second. He told us Dr. Marisa Kruger would be the one.

By this time, Number 3 was approaching eight years old, the third grade, and a beast of a state mandated reading test loomed on her horizon. I wasted no time getting her in to see Dr. Kruger. We even went one step further and took the whole family (minus one). That was probably the best experience Number 3 has ever had. Dr. Kruger was extremely patient with her and managed to draw out the necessary information without throwing her into a total frozen meltdown.

Dr. Kruger did a lot of educating that day. I learned so much about what this child was dealing with. She spoke to me from the voice of having lived a big part of what my child was living. Far sighted children have the ability to force focus their eyes, so it appears they can see clearly. The problem is this creates a tremendous amount of of stress that shows up in other areas of their lives, including behavior and academic success. She identified the activity that caused the most stress for Number 3, and prescribed minimum correction to reduce her stress for that activity. It was a pretty radical reduction in correction.

We rocked along through that school year. My daughter passed her test on the first attempt, but it was kind of close. She scored a 75 on reading and an 85 on math. We went back to Dr. Kruger during the summer after third grade and had a checkup. Adjustments were made as needed and then back to the school routine we went.

Fourth grade proved to be downright scary. It is a major leap in expectations for the students. It sees the addition of the state mandated writing test, and the reading requirements jump quite a bit. After a nerve-racking first six weeks, I requested all sorts of intervention possibilities as a means of opening the door to get my daughter some help if things continued like they had begun.

During the process, I also made contact with Dr. Tessler again. I decided to move forward with seeing what he could offer us. We scheduled, and of all things, he sent us a stress evaluation. One night before the trip to Denver, my daughter and I filled out the assessment. I knew she was experiencing lots of stress. I didn’t realize how much EVERYTHING was stressing her out.

He looked over her questionaire, asked me what my concerns were, and then proceeded to discover what was going on with her visual field. I watched the whole process from the sidelines. What he discovered was a child whose eyes worked, but whose brain wasn’t making sense of most of what was in her visual field. My daughter’s blind spot (everyone has them where the optic nerve attaches to the eye) was twice the normal size on the left eye and almost four times normal on the right side. She was only able to clearly identify what she saw in an area slightly larger than the size of a quarter with each eye. She was essentially functioning with tunnel vision. No wonder she was in a constant state of stress. She literally didn’t know what was about to blind-side her every second of every day of her young life.

He then proceded to identify a series of colors that were supportive for her body. He did this using muscle checking similar to what a chiropractor might use. We had experienced muscle checking in some of my early BrainGym classes, so I was very comfortable and confident with the process.

We left Denver with a very simple setup that included a light and some colored overlays. My daughter had been instructed to spend 20 minutes a day in total darkness with only the colored light on. She was to practice relaxed breathing techniques during that time.

The first session at home was extremely painful and traumatic. She was adamant that she didn’t want to do it. I have learned with her that punishment won’t necessarily get the desired outcome, so I have to offer some pretty significant bribes, which I did in the form of riding horses at her uncle’s house after a certain number of sessions had been completed without fuss. It worked.

The process was never an easy one, because it took away from other things she would rather be doing, however, it got easier, and the results were incredible.

After approximately six months and three different color combinations, her final visual assessment showed that her visual field had returned to something close to normal. Her stress self-assessment revealed a child who had mellowed substantially. She went from mostly 4’s and 5’s on the assessment to 0’s, 1’s, and 2’s. Her quarter-sized visual field opened up to the full limits of the testing apparatus. Her blind spots returned to normal size. Her fourth grade TAKS tests were 85 in reading and 95 in math, and she received “commended” status in math and writing. Her shyness decreased radically, and her response to discipline improved noticeably.

A year later, we are facing the fifth grade tests. Math, science, grammar, and spelling continue to be her strong subjects. Reading is still more challenging. However, she is making choices about her success in reading. When she chooses to be successful, she is. She did not have that ability before.

There are a number of things we continue to do to support my daughter’s vision and reduce her stress. We have a fabulous chiropractic neurologist who does some pretty incredible things for her. We own two horses that she rides frequently. We do our best to find sports activities that allow her to run and jump and experience success.

However, I cannot say enough about the work of Dr. Stuart Tessler and Dr. Marisa Kruger. These two people changed my daughter’s destiny in so many ways. I will continue to stay in contact with them and revisit this healing process as needed.

I highly recommend that educators and parents consider what “else” might be going on with a child who has reading challenges. Think outside the box like we did. Do what you have to do to get your child the help he or she needs. Don’t expect the school to fix things for you. They are limited in what they can do. Too many of the traditional and accepted offerings do not produce adequate results. Push your own envelope and go against the grain if you have to. It is worth spending every last penny you have to see your child turn the page on success.

What successful alternative therapies and providers have you found in your search for health and wellness? Let’s build a resource center within this blog.

Resources:

Dr. Stuart Tessler http://www.fightorflighttherapy.com/

Dr. Marisa Atria Kruger http://www.visiontransformation.net/


This entry was posted on Thursday, February 26th, 2009 at 7:27 AM and is filed under BrainGym, Vision, alternative health, children, education. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.

2 Responses to “Making a Difference”
Dr. T Says:
February 26, 2009 at 10:53 AM
Angie,

How touching. It brings a tear. Thanks for your kind words. I was happy I could help.

Give No. 3 a hug for me.
And, stay in touch.
Dr. T.

PS: What a nice resource. You’ve done a really nice job. Life here goes on, still trying to connect with the military for all these poor folks coming back with PTSD and TBI (traumatic brain injury). It took so persistence, and I finally got all the way to Washington, but they’re wanting ‘evidence-based’ research. So now I’m trying to make those connections as well. It’s proving difficult and I’m not making much headway. It’s amazing how many professionals and academics are just NOT interested in anything outside their knowledge base. Where else does innovation come from?? And a neurologist told me I’d have trouble getting professional referrals because, and I quote, “your people get better.” I thought that was the idea!!. He says my success is a threat to them. I just don’t get it.

Anyway, glad to hear our girl is doing sooooo well. My best to you, and keep up the good work.
mst



http://angiecox.net/.../21/concussion/
Concussion
Monday evening was the monthly horse club meeting at the rodeo arena. We’ve started riding at the meetings instead of having “just a meeting”. We decided to take both of our horses out to the arena since leaving Buddy at home results in a trench being worn all along the fence. He gets really cranky when he is left behind.

Once my daughter had her horse saddled and had started riding, I told my big brother that I wanted to ride the other horse bareback. On goes the bridle, up goes me (no easy feat), and into the arena we go. Buddy is an old horse, in his 20’s. He occasionally let’s me know that he is less than pleased that I have chosen to ride him, but nothing too violent.

We made 3 or 4 circles around the perimeter of the arena at a nice slow walk. On the fourth trip around, something happened. I guess he spooked at the late evening shadows and the next thing I knew, I was going down. I landed in plowed dirt (definitely not a soft substance if that’s what you were thinking), smacking my left glute and bouncing my head off the ground in the process. I rolled over rather slowly, took a second to collect my wits, and then proceeded to drag myself upright and walk to the center of the arena where Buddy and other adults were waiting for me. Knowing “the law” that says you must get back on a horse when you are thrown, I prepared myself for the ascent. However, a feeling of blackness began to envelope my vision and I leaned against Buddy’s shoulder to rest for a moment.

My next realization was of me sitting in the dirt and people around me asking the how many fingers and what’s today’s date questions. Yep, for the first time in my life, I involuntarily checked out. As concussions go, mine was probably very mild with no headache or nausea, and yet my brain was shaken enough to need a moment to shut down and reboot.

I went to see my amazing chiropractic neurologist Tuesday morning after a very sore and tender night sleeping in a chair in the living room. Our bed is in the basement, and there was NO WAY I was going to attempt descending and ascending those stairs. He did wonders for me resulting in at least a 50% improvement in the way my body was feeling 36 hours post accident. He even did some neuro stuff to help my head fog to clear and restore my ease of eye movement.

In spite of the chiropractic success, I couldn’t shake something my daughter’s vision specialist had once said to me. I sent him an email telling him what had happened and asking him his thoughts. He replied, “OK, well, I know you know that I want to see you YESTERDAY. The earlier we intervene, the quicker we can halt the cascade of excitotoxins that mediate the post-concussion symptoms and syndrome. For example, six months or two years from now, you could go through a deep depression and have no inkling it was caused by this concussion.”

“From what you’ve said, there’s no question that you’ve been injured (for example, many of the people I treat never blacked out). Yes, you’re likely to recover reasonably well w/o light therapy. But post-concussed brains are never the same. Just like any significant trauma, we may seem to get over it in time (actually, many are symptomatic, they just don’t relate their symptoms to their accident). All the traditional tests may be normal, but ultimately, we’re left more susceptible and less resilient to the next stress or trauma. That’s where the visual fields are most helpful. They help people see something is indeed wrong. Even when traditional testing measures little or nothing, I typically measure significantly more on visual fields. Optimally, I’d want to measure your fields and see exactly what we’d be treating.”


If I’m in need of the therapy, how many old cowboys (or young ones), ex-football players, and accident prone kids are walking around with emotional and physical limitations as a result of past head trauma? I know the therapy works, because I saw behavior changes that were nothing short of miraculous with my daughter. I will fork over the money and make at least three trips to Denver to see Dr. Stuart Tessler. I will experience his Fight or Flight Therapy and have the benefits of it while making strides to stop and reverse the damage done in a horse accident.

I know so many others who have had much worse accidents than mine. Dr. Tessler has told me in the past that he will bring his therapy to our area along with the follow-up visits if he has enough people who will commit to the therapy. His therapy isn’t cheap by small town standards, and yet how much money do people spend on super sized beverages and over priced junk food every week? How much do we spend each year on satellite or cable TV? If it were cancer, most would be selling a vehicle or mortgaging the house to get the necessary treatment. Unfortunately, insurance isn’t likely to pay for Fight or Flight Therapy, but it’s just as tax deductible as any other medical treatment. It’s an alternative therapy that requires a person to be willing to expend their own money to improve their quality of life.

That’s the direction western medicine is moving these days. If you want to get better, you’d better be prepared to foot the bill. If you want to get temporary relief of some of your symptoms while hanging onto your pet ailment, then take a pill that insurance pays for.

Stay tuned for the follow-up adventures in Fight or Flight Therapy. Maybe my experience will help others make a choice to get better.

This entry was posted on Thursday, May 21st, 2009 at 2:52 PM and is filed under Vision, alternative health, decisions.

Edited by Visionary7903, 23 May 2009 - 06:42 AM.


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#8 Jacovis

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Posted 09 November 2010 - 10:31 AM

Not strictly for PTSD, but Heart Rate Variability Biofeedback looks to offer another way to improve the effectiveness of therapy (Similar to the Fight or Flight Therapy example above). Dr. Eric Chamberlin calls HRV Biofeedback a 'very effective force multiplier' in the interview pasted in below...

http://blogs.psychce...-effectiveness/

Can Heart Rate Biofeedback Improve Therapy's Effectiveness?
By Richard Zwolinski, LMHC, CASAC

Dr. Eric Chamberlin discusses his work in Mind-Body medicine, and how a relatively new technology brings something new to psychotherapy.

Welcome, Dr. Chamberlin. Can you tell us about the genesis of your work with Heart Rate Variability Biofeedback and psychotherapy?

I really enjoy seeing people get better, and am always looking for tools that will increase efficiency and enhance outcome. In 2006, HRV Biofeedback devices became available on the consumer level. Having practiced Mind-Body Medicine since the early 90’s, I was intrigued by the possibility of individuals being able to fine-tune their nervous systems at a very deep level. When the so-called “Autonomic Nervous System” was discovered it was erroneously believed to be out of the realm of voluntary control.

HRV represents an exciting leap forward by helping people learn to balance the two branches of the ANS—the Sympathetic “Fight or Flight” and Parasympathetic “Rest and Digest” systems. And with balance of the ANS comes greater balance in life.

Psychotherapy can be extremely powerful, however the progress is often uneven. A common factor is clients not being in the “right mood” or “frame of mind” to be able to engage and benefit from treatment. For example, a person may be so anxious and preoccupied that she can’t focus effectively. Or, in talking about emotionally charged issues she may become overwhelmed, frozen and shut down. My hope was that by using HRV to balance the nervous system that it would be possible “to keep the train on the tracks,” moving toward resolution of the problems that brought them to treatment. It works.

Meditative techniques, breath-work and medication can all be used to address this, however, there are drawbacks/limitations to each of those methods. HRV Biofeedback doesn’t appear to have the same kinds of limitations. Can you describe the HRV technology and how you employ it?

HRV devices all work by measuring the pulse from a fingertip or earlobe. The heart rate is calculated and the data undergoes processing which is used to provide visual and auditory feedback. The client uses breathing (to control her heart rhythm), and then uses the feedback to enter a balanced state.

Clients use HRV before sessions; in the waiting room, car, etc., to balance and optimize readiness to engage in the challenging work to follow. If needed, clients will use HRV for 5 to 10 minutes to “get back on track” during a session. (It’s disturbing to realize how much time was wasted in the past when clients “derailed,” and the rest of the session was spent just trying to get them back on track.)

In the hours and days after a session, clients use HRV to help “digest” the experience and make change. It is a very effective “force multiplier.”.


...

http://blogs.psychce...ric-chamberlin/
What have you noticed from working with your patients?

What have you noticed from working with your patients?

A suburban mom comes in distraught after not sleeping the night before. Very anxious, she has been ruminating unproductively about not being able to get her boys to camp this summer for trivial reasons. The therapist’s attempts to encourage her to think about the situation differently are no match for her urgency and desperation.

She begins HRV to try to get her into a more balanced state where she can process more effectively. After 12 minutes she states “I feel better…they can go next year…it’s no big deal right?” With her balance and problem solving capacity restored, the solution was spontaneous and straightforward.

What followed was an emotional and very productive discussion about opportunities she had missed as a child because of her family’s dysfunction. She realized that the feeling of desperation was from her experience, and didn’t apply to her children who were very well cared for.

Have studies been done that support your observations?

Its an exciting time to be involved with HRV because it is in a “Translational Phase” meaning the basic neurophysiology has been well established and that knowledge is now being translated into clinical use.

Recent studies by Reiner at NYU, Karavidas and Lehrer at Robert Wood Johnson, and Zucker demonstrate the efficacy of HRV in clinical anxiety, depression, and PTSD respectively. A PhD Dissertation by Chaudri pending publication shows the efficacy of HRV combined with Psychotherapy in depressed patients with coronary artery disease. Specifically this study documented gains in focus, awareness, and emotional regulation.

What does the biofeedback technology offer that stress reduction methods such as breathing techniques, guided visualization, and meditation don’t?

HRV allows an individual to stimulate the cardiovascular system at its resonant frequency for a sustained period of time. Deep breathing, visualization, and meditation are all useful complimentary clinical tools, however they lack this critical property. Stimulation at the resonant frequency strengthens the baro-reflex, resulting in enhanced physical and psychological resilience by influencing heart rate, blood pressure, vascular resistance, pain threshold, central nervous system processing, mood, and attention. Analogous to physical conditioning, the baro-reflex can be thought of as the “muscle” of core Mind-Body strength.

We are very interested in creating a trauma program that makes use of these techniques as well as other emerging technologies. In many cases, trauma patients struggle with substance abuse and addiction and comprehensive treatment for this would need to be available. After trying various techniques myself, I am teaching some of my addiction patients Dr. John M. Kennedy’s B.R.E.A.T.H.E. technique which, though designed for heart-related stress, has a palpable and relaxing mind-body effect.

Have you done any specific work with HRV biofeedback and psychotherapy for addiction/addiction treatment?


Trauma and addiction are ubiquitous in clinical practice. With trauma comes difficulty in modulating arousal effectively, and people frequently resort to substance use to obtain relief. I have found HRV to be a very helpful tool for developing the capacity for self-regulation in clients who are seriously compromised.

Where is HRV biofeedback available?

The HRV devices currently available on the consumer level are the emWave “Desktop” (PC/Mac), emWave PSR (Handheld) and StressEraser (Handheld). This can be purchased from the manufactures directly, or authorized resellers.

An independent review of the StressEraser vs. emWave(s) is available at www.MindBodyTechnology.com.

Thank you for your time, Dr. Chamberlin. We look forward to learning more about HRV Biofeedback.

Edited by Jacovis, 09 November 2010 - 10:33 AM.





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