9 replies to this topic

[sUper GeNius]

Just wanted to relay some of my personal experience, and I wonder whether some may benefit.

For the last few years I have had some vague symptoms, ear issues, (twice temporarily lost my hearing in my left ear in a very narrow frequency band for a few days, 1Mhz,) dizziness, slight headache. One doctor thought I might have meniere's, another thought I might be having some strange migraines, minimal pain, but with aura. Then, about 1 year ago, I began to have strange sensations in my fingers, which at one point culminated or peaked in a flurry of buzzing sensations in my lips, hands, legs, basically all over. My primary physician thinks I probably do not have MS, due to the length of time I have been having these strange symptoms. SHe feels I would have pronounced sensory deficits by now. Doesn't make sense to me, as some I understand it can take many years before having sensory deficits and a diagnosis of MS. I intend to see a specialist in a few months.

Anyway, here's the reason for my post. I have come to believe that a supplement I have taken from time to time, NSI brand curcumin, with bioperine, relieves my symptoms. I have found, that on at least 5 occasions now, that I can completely eliminate the symptoms when I take enough, usually 2 to 4 grams over a few days.

If you google "Multiple Sclerosis cucumin" you will find a few mouse studies that that showed remarkable improvements in MS symptoms in these mice who received injections of curcumin.

If anyone has MS on these forums, you might want to see if you get relief from symptoms with cucumin. Again, I used NSI brand with Bioperine, 2-4 grams for about 3 days.

[luv2increase]

My mom was diagnosed with MS when she was 31. She is now 46. She doesn't have pronounced sensory deficits. Some people progress very rapidly while others' progression goes very slowly. She gets an MRI done every 4-5 years. Usually, there is a new lesion or two each checkup. It is progressing slowly.

She gets the numbness and weird sensations throughout her body at times. It is nothing substantial though. She has had a few bad attacks though. She walks fine, can do yard work etc.. without problem.

I am not trying to scare you, but the only sure way that you will know is by getting an MRI and/or spinal tap. I believe you should do this instead of trusting your doctor's speculation. Also, it is a primary physician who is giving you advice. You have to take that for what it is worth. I would go see your specialist like you have said. In the meantime, keep doing what works for you.

You may want to look at idebenone. I am trying to get her to take it. She doesn't take any meds whatsoever! The idebenone, supposedly, protects the myelin sheeth. This could, if I am correct, protect against further lesions.

Good luck to you!

[chrisp2]

You both (mom) are taking reasonably high levels of Vitamin D?

[ageless]

My mom was diagnosed with MS when she was 31.  She is now 46.  She doesn't have pronounced sensory deficits.  Some people progress very rapidly while others' progression goes very slowly.  She gets an MRI done every 4-5 years.  Usually, there is a new lesion or two each checkup.  It is progressing slowly. 

She gets the numbness and weird sensations throughout her body at times.  It is nothing substantial though.  She has had a few bad attacks though.  She walks fine, can do yard work etc.. without problem.

I am not trying to scare you, but the only sure way that you will know is by getting an MRI and/or spinal tap.  I believe you should do this instead of trusting your doctor's speculation.  Also, it is a primary physician who is giving you advice.  You have to take that for what it is worth.  I would go see your specialist like you have said.  In the meantime, keep doing what works for you. 

You may want to look at idebenone.  I am trying to get her to take it.  She doesn't take any meds whatsoever!  The idebenone, supposedly, protects the myelin sheeth.  This could, if I am correct, protect against further lesions.

Good luck to you!

Good advice!!
I'd also second the advice by chrisp2 to ensure adequate Vit. D. Lots of signs pointing to D preventing MS.
I read of that curcumin study a few years back... very interesting stuff! I am also taking the NSI Curcumin with bioperine regularly although I have no signs of MS or anything similar. Curcumin is just too good to pass up.

[sUper GeNius]

My mom was diagnosed with MS when she was 31.  She is now 46.  She doesn't have pronounced sensory deficits.  Some people progress very rapidly while others' progression goes very slowly.  She gets an MRI done every 4-5 years.  Usually, there is a new lesion or two each checkup.  It is progressing slowly. 

She gets the numbness and weird sensations throughout her body at times.  It is nothing substantial though.  She has had a few bad attacks though.  She walks fine, can do yard work etc.. without problem.

I am not trying to scare you, but the only sure way that you will know is by getting an MRI and/or spinal tap.  I believe you should do this instead of trusting your doctor's speculation.  Also, it is a primary physician who is giving you advice.  You have to take that for what it is worth.  I would go see your specialist like you have said.  In the meantime, keep doing what works for you. 

You may want to look at idebenone.  I am trying to get her to take it.  She doesn't take any meds whatsoever!  The idebenone, supposedly, protects the myelin sheeth.  This could, if I am correct, protect against further lesions.

Good luck to you!

Thanks. I"ll take a look at the idebenone. Are all indications that it is entirely safe for use?

[sUper GeNius]

You both (mom) are taking reasonably high levels of Vitamin D?

I have been for a few years. I have been taking NSI Occupower Basic, a multi-formula.

[wwxx]

You should go ahead and schedule and MRI asap. Two people around me have been diagnosed recently with many of your symptoms plus vertigo. Both were misdiagnosed many years back and now it's a little too late to really curb their symptoms. Not trying to scare, but the sooner you know positive or negative, the sooner you can move on the issue.
Acupuncture has helped them both tremendously.

[krillin]

http://www.lowdosena.../ldn_and_ms.htm

[EmbraceUnity]

I would recommend straight curcumin, since bioperine might be dangerous. LEF's DNA Protection Formula has no bioperine.

For more info on bioperine look here: http://www.imminst.o...hl=bioperine&s=

[sUper GeNius]

I would recommend straight curcumin, since bioperine might be dangerous. LEF's DNA Protection Formula has no bioperine.

For more info on bioperine look here: http://www.imminst.o...hl=bioperine&s=

I have considered eliminating the bioperine, but I have read that curcumin,(without bioperine,) has *very* low bioavailability. One thing I am currently trying to ascertain is whether occasional use of the curcumin with bioperine would be able to control the symptoms. I have been taking about 1.5 grams daily, and then increase to 3-4 grams when I feel symptoms. If I used the curcumin only when I was symptomatic, I might be able to limit my exposure to bioperine to a few days every six months or so.

I will try your suggestion though. Thanks.