A while back I went to the doctor and got my D levels tested. They were pretty low so the doctor put me on 50,000 IU of D twice a week. I was taking this for a while when I noticed that I was having some pain in my joints. The pain continued so I wanted to find out what was causing it. Of course, I couldn't really find anything that could be the cause. I didn't feel good, and the pain was actually in my ulna, additionally. I went to my doctor and got a bunch of blood tests (I don't know the exact numbers and I don't have the sheets with me so I'm going to guess), which said my blood calcium was 30 out of 35. Everything was normal. I later started Googling all of that stuff because I didn't have experience with a number of the items. When I googled blood calcium 30 I saw a page that was all about hyperparathyroid. I was reading the page and I had a good number of those symptoms. Painful bones. Painful joints. Lack of motivation. Side pain. Painful movement.
According to this site, blood calcium of 30 was high for an adult, and you should be like 29 at the most. I read this entire domain and everything I read sounded exactly like what I had. They said that symptoms typically came from ionized calcium rather than blood calcium, so I wanted to get that test. I got it from a doctor and my level was normal, like 1.18 in a range from 1.15 to 1.24 or something. I later got it at another place and the values were different and I was higher than the high range. Apparently when you are in pain your serum calcium level is higher. When I got all these tests, my PTH levels were tested. They were always regular, luckily. The normal functioning is that if your calcium levels go up, parathyroid hormone goes down, and when your calcium levels go down, parathyroid goes up. If you have low calcium, your body makes more parathyroid hormone to signal to let more calcium out of the bones. So if you have high calcium and high parathyroid, you probably have hyperparathyroid. I didn't have high parathyroid. It was always near the bottom of the range.
I was sure that my symptoms were caused by calcium. Everything lined up with everything they say about calcium. I need to mention that this was painful. My limbs hurt. My middle finger hurt. It was like someone was crushing my bones. I joined a hyperparathyroid forum and the members were talking about their experiences. I got the scan where they check your neck to see if you have anything enlarged. I was taking normal doses of D3 while this was happening because it was thought to be advantageous. I visited numerous endocrinologists who specialized in this and none of them though I had hyperparathyroid. I had other tests for things that can cause raised calcium and I didn't have any of them. All the while I continued to take vitamin D, but at lower doses. I eventually discovered that my symptoms were related to what I ate. Nightshades, potatoes, peppers, mushrooms, and tomatoes would all produce pain within a few days. weirdly enough, glucosamin, chondroitin, msm supplements did it, too. It's pretty normal to hear about these foods causing joint pain. I thought myabe I just had that. I suggest that these foods cause joint pain through hypercalcemia. If I didn't eat those I felt fine. I had to search a lot online but I found things about potatoes bringing about joint pain.
Later, I found that when I stopped taking vitamin D, I could eat whatever I want and not have any discomfort. Nearly no site that I read suggested that vitamin D could induce hypercalcemia. I did have a communication with someone who said that D2 can impact a few things. I haven't taken a D supplement since 2 years ago at this point and my bones feel fine. I can eat tomatoes and peppers all day and everything is amazing. So now my puzzle is wtf actually occurred ? Basically if I take D it will make me feel lousy.
I didn't go to a single doctor that suggested that possibly was the case. Interestingly, I have a few years of bloodwork suggesting that it is. I quit taking D when my tests showed a normal level upon which I realized I was no longer experiencing problems.
Specifics
- I was given D2 supplements to fix low D
- after I started taking them, I experienced sensations which I learned were hypercalcemia although I really only had them when I would eat nightshades, mushrooms, or glucosamine- chondroitim- msm supplements
- all of these experiences were accompanied by elevated past normal range ionized calcium tests
- upon switching to a lower amount of D, I still had symptoms
- my parathyroid levels were correct for each of my tests: high calcium - low parathyroid
- when I was not experiencing discomfort my calcium levels were regular
- stopping D caplets led to a discontinuation of uncomfortableness and I was able to eat anything I wanted
- this goes against everything I read, as references specifically stated that D does not cause hypercalcemia
- I will probably not use D again as it was rather uncomfortable and may have lead to bone issues and I don't want to experience it again
Edited by ironfistx, 02 February 2017 - 02:21 AM.