• Log in with Facebook Log in with Twitter Log In with Google      Sign In    
  • Create Account
  LongeCity
              Advocacy & Research for Unlimited Lifespans

Photo
* * * * * 3 votes

URGENT ALERT from THE FIRST IMMORTAL


  • Please log in to reply
271 replies to this topic

#31 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 08 December 2008 - 12:36 PM

Can Carol post here to help us, help William?

Thank you Missminni for all of this, is your communication stable (meaning easy, or able to be accessed if William goes through a worse spell)?

My access is by phone to the hospital lounge area where Bill spends virtually all his time.
When he goes home, access will be via Carol's cel phone, since there is no other way to reach him when he's there.


#32 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 08 December 2008 - 05:55 PM

From ACAM's search engine.

Three doctors within 50 miles from his house.
The first two are within 25 miles, in Biddeford.


http://www.acamnet.o...IdOOLjJ1J9MLIoF

http://www.acamnet.o...IYMyEgJHJOMxGqG

http://www.acamnet.o...JZMtHdKKIPOyEqG

Click HERE to rent this advertising spot to support LongeCity (this will replace the google ad above).

#33 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 08 December 2008 - 06:13 PM

From ACAM's search engine.

Three doctors within 50 miles from his house.
The first two are within 25 miles, in Biddeford.


http://www.acamnet.o...IdOOLjJ1J9MLIoF

http://www.acamnet.o...IYMyEgJHJOMxGqG

http://www.acamnet.o...JZMtHdKKIPOyEqG

I sent him the list from ACAM a while ago...and I believe he said those doctors weren't able to be contacted. That's often the case with those lists. They are usually old and outdated. Also, he cannot travel. He is in too much pain. Actually the hospital, if his doctor wasn't such an ass, would be the best place for him right now in case of an emergency. Carol house is 60 miles away. That's a long drive when there's an emergency. He should be going back there today stocked up with pain meds and planning on trying to get some supps down one way or another.

#34 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 08 December 2008 - 06:45 PM

Perhaps we could write in the message field when sending a PayPal donation, that the money sent can be used for bringing a doctor there, if TFI wants to? I really don't know how to get a doctor or nurse there, but it should be possible to find one, maybe in the hospital or in the area? I don't understand why they wouldn't do it. I don't mind my small donations being used for either cryo or this, maybe others think the same.



Could the funds be used for bringing a doctor to his house,
as suggested by Lotus ?


Kimberly Salaycik is on Facebook. Looks like the same person.

http://www.facebook....aycik/643540164

http://www.acamnet.o...IdOOLjJ1J9MLIoF

Edited by tham, 08 December 2008 - 06:53 PM.


#35 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 08 December 2008 - 07:04 PM

Perhaps we could write in the message field when sending a PayPal donation, that the money sent can be used for bringing a doctor there, if TFI wants to? I really don't know how to get a doctor or nurse there, but it should be possible to find one, maybe in the hospital or in the area? I don't understand why they wouldn't do it. I don't mind my small donations being used for either cryo or this, maybe others think the same.



Could the funds be used for bringing a doctor to his house,
as suggested by Lotus ?


Kimberly Salaycik is on Facebook. Looks like the same person.

http://www.facebook....aycik/643540164

Oddly enough, when I first sent the list from ACAM to Bill, Kimberly was at the top of the list and it said she was an oncologist. Now she doesn't even have a phone number. I think this sort of thing just frustrates Bill no end.
It's very easy for us to sit and google and wag our finger. Half these doctors are not reachable and the other half are not equipped to deal with the condition that Bill is in. Bill needs a paramedic or nurse...not a doctor...he needs someone to help administer his supplements intravenously. It's pretty simple. If you think you have found a suitable doctor or person, I suggest you contact them first and tell them about Bill and see if they will get involved. That would really be helpful.
Bill is in no condition to go through that kind of screening. He is debilitated by pain and pain medication.


#36 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 09 December 2008 - 04:30 PM

Michael McCann's phone number is the same.

http://www.addresses...r...ael[pro]=on&qn=Mccann&qs=NH

http://www.acamnet.o...JZMtHdKKIPOyEqG


I tried calling his number and that of Kristin Hughes's just
now, and both rang ? I called from Malaysia.

#37 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 09 December 2008 - 04:59 PM

Michael McCann's phone number is the same.

http://www.addresses...r...ael[pro]=on&qn=Mccann&qs=NH

http://www.acamnet.o...JZMtHdKKIPOyEqG


I tried calling his number and that of Kristin Hughes's just
now, and both rang ? I called from Malaysia.

Did they answer?
If you could speak with them and describe the situation, that would help.
But as I said before, he really needs a paramedic or a nurse. That's
where it's at now. He can't travel. You have to understand for Bill to not post, he is really
debilitated by the pain and the pain meds. He sounds great when you talk to him...he is such a fighter and
he will not give up, but there are certain parameters he has to work within.
He contacted some of the ACAM doctors before I even sent him the list months ago,
and evidently they were not appropriate for his situation.
Oh and about the vitamin c issue...he said that the vit C solutions they used, by law had to have a certain chemical
in it that made veins collapse and he has a serious issue with that since his veins are in really bad shape.
I know that sounds like something that could have been mitigated, but the solutions were premixed and FDA approved.
Maybe if his primary doctor was involved it could have been handled, but as you know, his primary doctor will not have anything
to do with vitamins or supplements....and let Bill know that in no uncertain terms.


#38 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 09 December 2008 - 05:24 PM

I can't really understand, just like others such as Kismet
too, why it's so difficult, up until now, to get even a single
gram of vitamin C into Bill's bloodstream.

Why is there a lack of coordination of effort over there on
this issue ? Are the fund administrators helping out
on this, since they are the ones who have the financial
authority ? How about his friends or relatives, such as
Carol ? (And I'm from Malaysia.)

It's quite simple, really.

Only two things need to be sorted out.

1. Firstly, is the central fund available to find a doctor to
come to Bill's house to start the IV C treatments ? If so,
how much is available ? Please clarify this with the fund
administrator.

2. If the central fund is given the green light for this, the
only thing left is just to find a doctor who is willing to go
travel to Bill's house at the agreed cost for a course of
at least 10 sessions.

Paramedics or nurses can't handle this, and in any case, they
won't do it without doctor's approval, as you had reported.
They also don't want to do this since this kind of therapy
is new to them and they won't know what to do in case
there are complications, as cautioned in the RECNAC
protocol. What if there is a Herxheimer-type reaction caused
by the mass apoptosis of cancer cells, which is very likely
given Bill's tumor-riddled body now ?

You need a nutritional or chelation-based doctor, and one
who is familiar with the RECNAC protocol.

This was why I had advised Bill to go over to the Maine
Integrative Center in Portland in the first place, or, better
still, get them to come over.

Since you reported that Bill found out the vitamin C formula
they were using was contraindicated for his veins, I wonder
why Bill did not at least ask them if they knew of other doctors
in the area who used a vein-friendly formulation.

If the fund is free to be used for this purpose, then we could
go ahead and look for doctors in the vicinity who can do this.
I will start by writing to the Maine Integrative Center if they
know of any, or you could call them too, since you are in the
USA.

Other sources :


http://www.orthomed..../resources.html

http://www.pandamedi...m...y=&state=ME

http://www.naturopat...amp;search=Find

Edited by tham, 09 December 2008 - 05:32 PM.


#39 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 09 December 2008 - 05:31 PM

If ALL the vitamin C solutions have a chemical in them to
make the veins collapse, then none of the doctors practising
the RECNAC protocol would be able to use them on him.
This looks like a dead end.

What is the chemical anyway ?

#40 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 09 December 2008 - 05:44 PM

I can't really understand, just like others such as Kismet
too, why it's so difficult, up until now, to get even a single
gram of vitamin C into Bill's bloodstream.

Why is there a lack of coordination of effort over there on
this issue ? Are the fund or administrators helping out
on this, since they are the ones who have the financial
authority ? How about his friends or relatives, such as
Carol ? (And I'm from Malaysia.)

It's quite simple, really.

Only two things need to be sorted out.

1. Firstly, is the central fund available to find a doctor to
come to Bill's house to start the IV C treatments ? If so,
how much is available ? Please clarify this with the fund
administrator.

2. If the central fund is given the green light for this, the
only thing left is just to find a doctor who is willing to go
travel to Bill's house at the agreed cost for a course of
at least 10 sessions.

Paramedics or nurses can't handle this, and in any case, they
won't do it without doctor's approval, as you had reported.
They also don't want to do this since this kind of therapy
is new to them and they won't know what to do in case
there are complications, as cautioned in the RECNAC
protocol. What if there is a Herxheimer-type reaction caused
by the mass apoptosis of cancer cells, which is very likely
given Bill's tumor-riddled body now ?

You need a nutritional or chelation-based doctor, and one
who is familiar with the RECNAC protocol.

This was why I had advised Bill to go over to the Maine
Integrative Center in Portland in the first place, or, better
still, get them to come over.

Since you reported that Bill found out the vitamin C formula
they were using was contraindicated for his veins, I wonder
why Bill did not at least ask them if they knew of other doctors
in the area who used a vein-friendly formulation.

If the fund is free to be used for this purpose, then we could
go ahead and look for doctors in the vicinity who can do this.
I will start by writing to the Maine Integrative Center if they
know of any, or you could call them too, since you are in the
USA.

Other sources :


http://www.orthomed..../resources.html

http://www.pandamedi...m...y=&state=ME

http://www.naturopat...amp;search=Find

Yes, I think you've described very well what should be done. I have absolutely no influence or authority over any of the funds collected for Bill. I know they are sizeable, but seem to be slated only for cryonics.
That would be up to the directors at Imminst. If they would like him to stay alive long enough for cryonics, maybe they could
organize and/or finance a doctor going to him.
I think finding a doctor who would do it is not as much an issue as paying for it.
As for contacting doctors and talking to them about this, I tried and had no luck. Couldn't get by the receptionists.
I think you would have to be someone in medicine or at least sound like a doctor to get through. Unfortunately I can't do that.
The most I ever got from all my phone calls was a list of agencies that would help pay for travel to treatment, but not the treatment.
It was bizarre. That's why I started this thread. Hoping a doctor or health professional could help and that the fund organizers
might suggest something, since they control the money. So far, we're batting zero.

ETA~as to your questions about his family and Carol...
He has no family to speak of. His mom died this summer from cancer. Carol is a friend of his moms (i think) who he is staying with.
She doesn't have money. She lives out in the backwoods where roads don't even get plowed when it snows. You do know that Bill was
incarcerated up until May? He developed Cancer while in prison and they refused him treatment for six months.
He has no money, no home, nothing. It was all confiscated when he was arrested.

Edited by missminni, 09 December 2008 - 05:54 PM.


#41 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 09 December 2008 - 05:56 PM

Bill is a single child ?

They confiscate all your assets over there, including your
home and money, when you are arrested there for a felony ?

Is that legal ? Over here in Malaysia they only freeze your
assets if you are a legal bankrupt, but give them back to
you when it is lifted.


I thought there were two funds, one for cryonics, which would
be off-limits unless approved for the vitamin C therapy, and
a central fund for supplements or alternative therapies, as
mentioned by David ?

Who is managing the central fund now ? Can the fund
managers, or Shannon, clarify this issue ?

Edited by tham, 09 December 2008 - 06:05 PM.


#42 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 09 December 2008 - 05:57 PM

If ALL the vitamin C solutions have a chemical in them to
make the veins collapse, then none of the doctors practising
the RECNAC protocol would be able to use them on him.
This looks like a dead end.

What is the chemical anyway ?

I don't know what the chemical is.
But he has Vitamin C that could
be made into a sterile solution
and used. He's also still interested in cesium
but that really needs to be monitored by someone.


#43 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 09 December 2008 - 06:25 PM

Bill is a single child ?

I think he has a sister, but she is not in a position to help.


They confiscate all your assets over there, including your
home and money, when you are arrested there for a felony ?
YES! and he is on probation and can't leave the state without permission.

Is that legal ?
Uh...let me see, Yeah. Just like it was legal for them to deny him medical service. Well actually not really.
That's why they destroyed his letters requesting medical help 6 months before they allowed him any. What difference does it make
if it's legal or not. It's happening.

Over here in Malaysia they only freeze your
assets if you are a legal bankrupt, but give them back to
you when it is lifted.


I thought there were two funds, one for cryonics, which would
be off-limits unless approved for the vitamin C therapy, and
a central fund for supplements or alternative therapies, as
mentioned by David ?
I am not versed on the fund situation. I only know about what Anthony was doing to help. The other two funds
are handled by people I don't know and I don't know what they are slated for or who is in charge of them. Nobody has
offered any help in this regard. I am not sure why nobody has, but it needs to be addressed yesterday. What good is the money
going to do if Bill dies...I don't get it. As in the beginning, I can only plead for help and get some attention to Bill's dilemma.
The directors here have to take action to help him. Before, it was members, not even members necessarily, but just registered users
who reached out to help. Still the directors seem to be oblivious to all this. I don't get it. Isn't this about life extension?
Please help extend this man's life!

Who is managing the central fund now ? Can the fund
managers, or Shannon, clarify this issue ?



#44 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 09 December 2008 - 06:34 PM

About the confiscation of all his belongings, as well
as the denial of treatment and destruction of his
letters requesting for medical help, those are FELONIES
themselves by your own government.

Someone should write to the American Civil Liberties Union,
Amnesty International and your congressman. This should
all be investigated.

Edited by tham, 09 December 2008 - 06:37 PM.


#45 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 09 December 2008 - 06:50 PM

About the confiscation of all his belongings, as well
as the denial of treatment and destruction of his
letters requesting for medical help, those are FELONIES
themselves by your own government.

Someone should write to the American Civil Liberties Union,
Amnesty International and your congressman. This should
all be investigated.


I appreciate your indignation, but this is a big country and this happens to
people everyday all over. It's rare that they ever get justice, but in Bill's case he
doesn't have time on his side and these concerns are something that
are quite irrelevant to his current situation.
I am more upset about the lack of action by the administrators of his funds.


#46 kismet

  • Guest
  • 2,984 posts
  • 424
  • Location:Austria, Vienna

Posted 09 December 2008 - 08:52 PM

If there was a doctor who wants to help and needs to be paid, (s)he would certainly get the money. You said finding a doctor is the easy part but we can't pay, isn't it the other way around? I believe you (TFI& others) were - or at least should have been - searching for a doctor for the last months, where is (s)he? The money obviously is there.
The administrators of the fund can only... well.. administer the fund, but to whom? I don't know if it's their task to look for a doctor, even if it was, obviously it's not that easy to find one?

Not enough money for cryo, no doctors, no alternative treatments. So there's hoping that chemo buys TFI enough time for either to arrive?

#47 Ringostarr

  • Guest
  • 87 posts
  • 8

Posted 09 December 2008 - 09:55 PM

If there was a doctor who wants to help and needs to be paid, (s)he would certainly get the money. You said finding a doctor is the easy part but we can't pay, isn't it the other way around? I believe you (TFI& others) were - or at least should have been - searching for a doctor for the last months, where is (s)he? The money obviously is there.
The administrators of the fund can only... well.. administer the fund, but to whom? I don't know if it's their task to look for a doctor, even if it was, obviously it's not that easy to find one?

Not enough money for cryo, no doctors, no alternative treatments. So there's hoping that chemo buys TFI enough time for either to arrive?


Most nurses can administer an IV. It does not have to be a doctor.

#48 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 09 December 2008 - 10:27 PM

If there was a doctor who wants to help and needs to be paid, (s)he would certainly get the money. You said finding a doctor is the easy part but we can't pay, isn't it the other way around? I believe you (TFI& others) were - or at least should have been - searching for a doctor for the last months, where is (s)he? The money obviously is there.
The administrators of the fund can only... well.. administer the fund, but to whom? I don't know if it's their task to look for a doctor, even if it was, obviously it's not that easy to find one?

Not enough money for cryo, no doctors, no alternative treatments. So there's hoping that chemo buys TFI enough time for either to arrive?

You misunderstood me. I didn't say finding a doctor was easy. It's not. That's the problem. I've always said that the money would
come if not from the fund here, from members who have offered to help on their own. It is finding the doctor that's hard because of
where Bill lives, especially.
Having said that, wasn't it you who said that $175 a vit C drip was too expensive and that it would be a waste
to spend money like that and that it should be saved for cryonics because he was going to die anyway, basically... I think that was the gist of it.
I started this thread because I thought that there might be members who were connected to the medical community in some way
and might be able to help Bill. I'm not, not at all, nor can I talk the talk.
So what's the solution? Bill certainly is no state to pursue a doctor. I've tried in my feeble way, but not knowing anybody personally,
it was a shot in the dark that didn't do anything but get me a list of agencies that help cancer victims with traveling expenses.
I thought maybe a lab rat here would know somebody in clinical studies or
something ... you know I really don't know anything about how that profession works...I was just hoping.


#49 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 09 December 2008 - 10:29 PM

If there was a doctor who wants to help and needs to be paid, (s)he would certainly get the money. You said finding a doctor is the easy part but we can't pay, isn't it the other way around? I believe you (TFI& others) were - or at least should have been - searching for a doctor for the last months, where is (s)he? The money obviously is there.
The administrators of the fund can only... well.. administer the fund, but to whom? I don't know if it's their task to look for a doctor, even if it was, obviously it's not that easy to find one?

Not enough money for cryo, no doctors, no alternative treatments. So there's hoping that chemo buys TFI enough time for either to arrive?


Most nurses can administer an IV. It does not have to be a doctor.

That's true except that, as Tham pointed out, he needs a doctor, or someone very knowledgeable because after the infusion of C, the die off of the cancer
cells could overwhelm his system and he could die from that. Yet another reason it is so hard to find somebody to do this.


#50 Lotus

  • Guest
  • 71 posts
  • 1
  • Location:Stockholm

Posted 10 December 2008 - 12:36 AM

I wrote to Kimberley on Facebook, asking her to help. I asked her to either call William, post on this board, or write to me and I would forward her answer to this board. Is it possible to write emails to other doctors in the area? Perhaps we could even write to Williams doctor, and try to convince him. Trying to come up with ideas to solve this.

#51 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 10 December 2008 - 02:24 AM

I wrote to Kimberley on Facebook, asking her to help. I asked her to either call William, post on this board, or write to me and I would forward her answer to this board. Is it possible to write emails to other doctors in the area? Perhaps we could even write to Williams doctor, and try to convince him. Trying to come up with ideas to solve this.



It can't hurt to contact Kimberly or anybody else for that matter. My experience is they don't respond. I've tried a few times.
I even called Cancer treatment Center and told them the story and they said it would cost $100,000 to get started there.
That's the way it is. We need health reform.
I don't know about contacting his doctor, (although I agree with you and at this point anything is worth a try), because Bill might not want you to.
The doctor is evidently vehement in his position. I actually think it's
worth a try, but I don't think Bill would like the idea. He's very concerned about not angering him. PM Bill and ask him.


#52 kismet

  • Guest
  • 2,984 posts
  • 424
  • Location:Austria, Vienna

Posted 10 December 2008 - 12:03 PM

You misunderstood me. I didn't say finding a doctor was easy. It's not. That's the problem. I've always said that the money would
come if not from the fund here, from members who have offered to help on their own. It is finding the doctor that's hard because of
where Bill lives, especially.

My bad

Having said that, wasn't it you who said that $175 a vit C drip was too expensive and that it would be a waste
to spend money like that and that it should be saved for cryonics because he was going to die anyway, basically... I think that was the gist of it.

Basically yes. 175$ per vitamin C drip is an incredible rip-off, but this is not the issue. The problem is that it is only a short-term solution with unkonwn effects on SCLC in humans. On the other hand I said, TFI & others need to make the best choice between cryonics and supplements, even if cryonics is more important (my opinion), if he dies before there's enough money for cryo, yeah... very bad.


I started this thread because I thought that there might be members who were connected to the medical community in some way
and might be able to help Bill. I'm not, not at all, nor can I talk the talk.
So what's the solution? Bill certainly is no state to pursue a doctor. I've tried in my feeble way, but not knowing anybody personally,
it was a shot in the dark that didn't do anything but get me a list of agencies that help cancer victims with traveling expenses.
I thought maybe a lab rat here would know somebody in clinical studies or
something ... you know I really don't know anything about how that profession works...I was just hoping.

It's pretty strange that no one knows a doctor who could help... I can't help in finding a doctor at all living in Europe..
What about secretly administering the IV drips in the hospital (or in front of it, hah!) and hoping that no one notices? If something goes wrong they are obliged to save his life anyway. Strictly speaking I believe it's a stupid idea, but better than dying.

You should find out how well he's responding to chemo and how much time it will give him to find a solution.

#53 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 10 December 2008 - 01:49 PM

You misunderstood me. I didn't say finding a doctor was easy. It's not. That's the problem. I've always said that the money would
come if not from the fund here, from members who have offered to help on their own. It is finding the doctor that's hard because of
where Bill lives, especially.

My bad

Having said that, wasn't it you who said that $175 a vit C drip was too expensive and that it would be a waste
to spend money like that and that it should be saved for cryonics because he was going to die anyway, basically... I think that was the gist of it.

Basically yes. 175$ per vitamin C drip is an incredible rip-off, but this is not the issue. The problem is that it is only a short-term solution with unkonwn effects on SCLC in humans. On the other hand I said, TFI & others need to make the best choice between cryonics and supplements, even if cryonics is more important (my opinion), if he dies before there's enough money for cryo, yeah... very bad.


I started this thread because I thought that there might be members who were connected to the medical community in some way
and might be able to help Bill. I'm not, not at all, nor can I talk the talk.
So what's the solution? Bill certainly is no state to pursue a doctor. I've tried in my feeble way, but not knowing anybody personally,
it was a shot in the dark that didn't do anything but get me a list of agencies that help cancer victims with traveling expenses.
I thought maybe a lab rat here would know somebody in clinical studies or
something ... you know I really don't know anything about how that profession works...I was just hoping.

It's pretty strange that no one knows a doctor who could help... I can't help in finding a doctor at all living in Europe..
What about secretly administering the IV drips in the hospital (or in front of it, hah!) and hoping that no one notices? If something goes wrong they are obliged to save his life anyway. Strictly speaking I believe it's a stupid idea, but better than dying.

You should find out how well he's responding to chemo and how much time it will give him to find a solution.

I think it's the kind of thing where doctors in this country are so conditioned to only treat illnesses with certain protocols...and they are afraid to get involved in anything out of the box. The radiologist that wanted to help Bill was put in check by the chemotherapist who is his primary care doctor. It's highly political and Bill's life seems to be irrelevant in this man's ego-maniacal control of his medical options. This is a cautionary tale for all who might one day find themselves seriously ill. You must find a medical professional you can work with.
I am wondering if it might not be an option to somehow get in touch with the radiologist who was put in check. I did mention this to Bill a few days ago when he was still in hospital, but he didn't want to put him in an awkward position. I don't know his name, or how to reach him, but right now, that looks like the most viable option. Bill, if you are reading, please give me this opportunity to help and give me the man's contact info. All I know is his first name is Jeff.


#54 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 10 December 2008 - 04:33 PM

Has Bill gone home ?

If he has, you don't need to bother about the oncologist.
Just discard him and start working on the vitamin C.
Keeping him is not going to help Bill anymore, and is in
fact a complete waste of time.

Or tell Bill to find another more knowledgeable, flexible
and up-to-date oncologist.

He doesn't seem very competent, innovative nor keeping with
the latest chemo developments anyway. He used the outdated
"gold standard" chemo regimen, cisplatin plus etoposide, on Bill.

That, with or without radiation, was virtually useless - giving him
a few extra months at most at the expense of a debilitated quality
of life. Look at his condition now - that's more than enough proof.

I'm no doctor, let alone oncologist, but if I were that guy, I would
have enrolled Bill immediately on the Amrubicin study which started
in September last year. See my post in the "Other Conversations"
section.

Instead, now that he has put Bill on at least two cycles of the
useless regimen, he's disqualified Bill from the study, whose
entry criteria requires that the patient has been on no more
than one cycle.

Now that amrubicin looks out of Bill's reach, the second best
chemo regimen, in my opinion, would be that below, which
I am sure this current oncologist wouldn't have thought of.
The first three are the most important :

Topotecan
Imatinib
Zolendrenate

and Vitamin K2 as MK4 intravenously, or orally in liquid form
since Bill can still swallow some fluids.

#55 tham

  • Guest
  • 1,406 posts
  • 496
  • Location:Kuala Lumpur, Malaysia

Posted 10 December 2008 - 04:46 PM

Minni,

Bill said the phones numbers are outdated, but those of the
other two ACAM doctors, Kristin Hughes and Michael McCann,
were still good.

Why don't you call them and see what they say ?

Surely finding a doctor who practises the RECNAC protocol
can't be too hard. Many of the those who practise chelation
should know it.

How about contacting Hugh Riordan's center ? Most importantly,
as I said, find out whoever is managing the supplements fund
and ask if the money is there in the first place to bring a doctor
over from Wichita, if they are willing to come.

http://www.brightspo...drs/index.shtml

#56 Anthony_Loera

  • Life Member
  • 3,130 posts
  • 714
  • Location:Miami Florida

Posted 10 December 2008 - 06:20 PM

Guys,

just an FYI, I think there are 3 funds (maybe I am incorrect and there are only 2):

1- This has close to $1500 that is for supplements and general things Bill needs, which are contributions from folks buying RG products. When Bill needs anything, he usually lets me know. I would not make a move without his consent with these funds.
2- Imminst fund from paypal contributors. I believe this one is set up by imminst members, and It's likely also controled by Bill through Shannon or Mind.
3- Cryonics paypal fund with a little over $13k which doesn't cover cryonics expense... yet.

Correct me if I am wrong on the funds list.

Having said that, coordination is getting harder to do with Bill because of the circumstances...

A

#57 bacopa

  • Validating
  • 2,223 posts
  • 159
  • Location:Boston

Posted 11 December 2008 - 04:22 AM

can this doctor be reasoned with? Maybe we should try talking to him, not me because I just don't know enough about this situation. but maybe someone here like you Missmini could talk to him? See if he can be reasoned with. This guy sounds like a narrowminded ass to say the least. Also why aren't there more people from imminst helping out on this thread? You'd think there would be. What do you think the chances a vit C drip or Reservatrol drip would help him anyways? Is it a slim chance or a good chance? Have you asked whether the people who gave money towards his cryo pres fund might be ok with seeing some of that money go to vit c therapy? Or towards a new doc?

#58 missminni

  • Topic Starter
  • Guest
  • 1,857 posts
  • 27
  • Location:NYC

Posted 11 December 2008 - 05:05 AM

can this doctor be reasoned with? Maybe we should try talking to him, not me because I just don't know enough about this situation. but maybe someone here like you Missmini could talk to him? See if he can be reasoned with. This guy sounds like a narrowminded ass to say the least. Also why aren't there more people from imminst helping out on this thread? You'd think there would be. What do you think the chances a vit C drip or Reservatrol drip would help him anyways? Is it a slim chance or a good chance? Have you asked whether the people who gave money towards his cryo pres fund might be ok with seeing some of that money go to vit c therapy? Or towards a new doc?

Bill had to go back in the hospital today...he went to the emergency room ... he was having trouble breathing. He posted it in the prognosis thread around noon. I already spoke with Anthony about somebody talking to the doctor. Me talking to the doctor wouldn't do any good. When I talk to doctors they glaze over. We need someone who can talk doctor talk. Then he might respect what they're saying.
He would never respect my opinion. In fact it would probably anger him. Remember, this is a man who thinks vitamin therapy is radical.
If anyone here feels equipped to take on the task, have a go at it. Things couldn't get much worse. He's not doing anything to help him. Maybe if he knew there was a community of people watching, he would be more inclined to do the right thing.


#59 bacopa

  • Validating
  • 2,223 posts
  • 159
  • Location:Boston

Posted 11 December 2008 - 05:36 AM

I don't know who to ask but I hope someone can reason with this monster. Who thinks in this day and age that a vitamin regimen is radical?

Click HERE to rent this advertising spot to support LongeCity (this will replace the google ad above).

#60 lunarsolarpower

  • Guest
  • 1,322 posts
  • 54
  • Location:BC, Canada

Posted 11 December 2008 - 05:40 AM

I don't think this is the best place to put this but this thread seems to be where the activity has moved. Does anyone know if the Venturist fund has considered KrioRus if the CI minimum is not raised? It would be a long shot but I think it should at least be discussed.




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users