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URGENT ALERT from THE FIRST IMMORTAL


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#61 missminni

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Posted 11 December 2008 - 12:30 PM

I don't think this is the best place to put this but this thread seems to be where the activity has moved. Does anyone know if the Venturist fund has considered KrioRus if the CI minimum is not raised? It would be a long shot but I think it should at least be discussed.

They have and Bill is against it. He told me that very recently...a few days ago...he wants nothing to do with KrioRus. He was very animate about that.

#62 tham

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Posted 11 December 2008 - 06:44 PM

Guys,

just an FYI, I think there are 3 funds (maybe I am incorrect and there are only 2):

1- This has close to $1500 that is for supplements and general things Bill needs, which are contributions from folks buying RG products. When Bill needs anything, he usually lets me know. I would not make a move without his consent with these funds.
2- Imminst fund from paypal contributors. I believe this one is set up by imminst members, and It's likely also controled by Bill through Shannon or Mind.
3- Cryonics paypal fund with a little over $13k which doesn't cover cryonics expense... yet.

Correct me if I am wrong on the funds list.

Having said that, coordination is getting harder to do with Bill because of the circumstances...

A



Minni,

Call Carol to ask Bill if he would like to give his approval to
use any, or all, of the three funds (or two ?) mentioned by
Anthony, to hire a doctor to go to his home to start the vitamin C
and/or resveratrol therapy.

The supplements fund only has $1,500, insufficient for more
than a few sessions. That means at least the second Paypal
fund would be required as well.

Or ask her to tell Bill to set up Yahoo Messenger with a mic,
preferably with cam too, on his laptop, if he has WiFi access
at the hospital.

You can then communicate with him directly, if the pain is
not too much for him to speak or type occasionally.


Perhaps Shannon or Mind could post here too, to clarify the
actual status of the second (Paypal) and third (Cryonics) funds ?


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#63 missminni

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Posted 11 December 2008 - 07:06 PM

Guys,

just an FYI, I think there are 3 funds (maybe I am incorrect and there are only 2):

1- This has close to $1500 that is for supplements and general things Bill needs, which are contributions from folks buying RG products. When Bill needs anything, he usually lets me know. I would not make a move without his consent with these funds.
2- Imminst fund from paypal contributors. I believe this one is set up by imminst members, and It's likely also controled by Bill through Shannon or Mind.
3- Cryonics paypal fund with a little over $13k which doesn't cover cryonics expense... yet.

Correct me if I am wrong on the funds list.

Having said that, coordination is getting harder to do with Bill because of the circumstances...

A



Minni,

Call Carol to ask Bill if he would like to give his approval to
use any, or all, of the three funds (or two ?) mentioned by
Anthony, to hire a doctor to go to his home to start the vitamin C
and/or resveratrol therapy.

The supplements fund only has $1,500, insufficient for more
than a few sessions. That means at least the second Paypal
fund would be required as well.

Or ask her to tell Bill to set up Yahoo Messenger with a mic,
preferably with cam too, on his laptop, if he has WiFi access
at the hospital.

You can then communicate with him directly, if the pain is
not too much for him to speak or type occasionally.


Perhaps Shannon or Mind could post here too, to clarify the
actual status of the second (Paypal) and third (Cryonics) funds ?

Tham, I appreciate your advice and concern. I spoke to Carol
yesterday and told her there were funds available to Bill should he need them for
alternative medical help. I am sure the funds would be made available if he requested them.
In all fairness, Bill himself was actually against using cryonics money for therapy because he thought it wasn't right to use
money collected for a specific purpose for another, and wouldn't be fair to the donors. I don't think the donors would mind, but Bill
was adamant about it. Honestly, there are enough people who have offered to help with money but getting a doctor
to take on the case is the problem.
The only hope is the radiologist Jeff who wanted to help before he was intimidated
by Bill's chemo doctor. I don't know his name except for Jeff, and it would have to be Bill contacting him and Bill said he
didn't want to put him in an awkward position. Bill is not putting himself first in this equation. He is always concerned for the
other guy. It just blows my mind.
Also,
Bill doesn't have a laptop. When he is in the hospital he uses a computer in the patients lounge.


#64 Shannon Vyff

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Posted 12 December 2008 - 07:32 AM

I don't think this is the best place to put this but this thread seems to be where the activity has moved. Does anyone know if the Venturist fund has considered KrioRus if the CI minimum is not raised? It would be a long shot but I think it should at least be discussed.

They have and Bill is against it. He told me that very recently...a few days ago...he wants nothing to do with KrioRus. He was very animate about that.



Yes, the Venturists are looking at alternative storage until enough money is raised for storage at CI. Our Compassionate Care contract authorizes the Venturists to do this.

I'm hoping that the 1500 fund that Anthony is controlling can cover the I.V. vitamin therapy. I've used our forum options to track this thread this thread so emails will be sent to my inbox, I will be able to stay updated more closely.

The ImmInst fund can help to, just let us know if anything is needed. I would think that the I.V. vitamin treatment can be sent up for less than 1500. I'm not sure since I'm not making the calls, i know that my Grandmother though recently did I.V. therapy in KS for under that amount. Missminni, if you find a Dr. that will work with William, cost should not be an issue.

Thank you Tham for sending me an update.

#65 tham

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Posted 12 December 2008 - 11:20 AM

Thank you, Shannon. At least that solves the funding
problem.

However, when Bill said he called this center which I had
linked him to earlier, he mentioned they charged $175 per
session of IV C, 100 grams. $1,500 would just be enough for
about 8 sessions. It seems a single cycle is 10 sessions.

I don't know the costs for a doctor visit to his house or
the hospital, but it would be likely two or three times this.

http://www.mainewellness.com/


Anyway, I'll write to them and find out more.


Minni, which hospital is Bill in now ? I can't find
any radiologist or radiation oncologist named Jeff
at the following. What's his oncologist's name ?

http://www.mmc.org/

http://www.goodallhosp.org/

http://www.mercyhospital.com/


This one at Scarborough is where the Amrubicin trial
is underway now (and where Bill should have gone to
in the first place).

http://www.mccm.org/...p;CancerType=22


I think I've found Jeff :

http://www.smmc.org/...hp?choice=you_j

http://www.spectrumm...PhysicianID=343

http://www.spectrumm...;FacilityID=112

Edited by tham, 12 December 2008 - 11:21 AM.


#66 missminni

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Posted 12 December 2008 - 12:28 PM

I just spoke with Bill.
He actually answered the phone in the patients lounge. I was so surprised.
He said they were probably going to start chemo today...in hospital and
there was no way he could get any doctor in there to do the vit C IV.
He said it was a waste of time to try. And that the other doctor who
got scared off was permanently scared off.
That hospital is his doctor Kirk's domain.
How in the world will another doctor get by that? I might add
that I don't do well speaking with doctors...If there was a chance of even finding
another doctor that would get involved...and then if Kirk would even allow him
near Bill...I am not the one who will convince him. Believe me.
That is why I started this thread to begin with.
To find someone who could help with
that effort.
If anyone wants to talk to Bill, try him at 207 662 3743. He should be back
by the phone in an hour. (9 am EST)

Edited by missminni, 12 December 2008 - 01:04 PM.


#67 Shannon Vyff

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Posted 12 December 2008 - 01:04 PM

Bill has not been online since yesterday morning and I only know that by looking at the
members activity.
That does not bode well for his condition.
I spoke with Carol the day before yesterday. She wouldn't give out any info about Bill.
Not even if he was in hospital or not. She said everything had to be cleared by Bill before
she could talk about it. I left my number to call back. I have not heard back. I am assuming that
things have advanced to a very dire stage. I have not a clue on how to arrange IV
for him..remember he is in the hospital under the care of the doctor who doesn't
approve of them. How in the world will another doctor get by that? I might add
that I don't do well speaking with doctors...If there was a chance of even finding
another doctor that would get involved...and then if Kirk would even allow him
near Bill...I am not the one who will convince him. Believe me.
That is why I started this thread to begin with. To find someone who could help with
that effort.


So there is still no one that can contact the Dr.'s, Tham has provided some information that will make it more easy. Maybe Carol who is there, could use the information that has been compiled here at ImmInst? Missminni did you ask Carol if she can get on-line (then explain it is easy and free to register here, and let her know to check the Active Topics and look for URGENT ALERT from THE FIRST IMMORTAL?

#68 missminni

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Posted 12 December 2008 - 01:08 PM

Bill has not been online since yesterday morning and I only know that by looking at the
members activity.
That does not bode well for his condition.
I spoke with Carol the day before yesterday. She wouldn't give out any info about Bill.
Not even if he was in hospital or not. She said everything had to be cleared by Bill before
she could talk about it. I left my number to call back. I have not heard back. I am assuming that
things have advanced to a very dire stage. I have not a clue on how to arrange IV
for him..remember he is in the hospital under the care of the doctor who doesn't
approve of them. How in the world will another doctor get by that? I might add
that I don't do well speaking with doctors...If there was a chance of even finding
another doctor that would get involved...and then if Kirk would even allow him
near Bill...I am not the one who will convince him. Believe me.
That is why I started this thread to begin with. To find someone who could help with
that effort.


So there is still no one that can contact the Dr.'s, Tham has provided some information that will make it more easy. Maybe Carol who is there, could use the information that has been compiled here at ImmInst? Missminni did you ask Carol if she can get on-line (then explain it is easy and free to register here, and let her know to check the Active Topics and look for URGENT ALERT from THE FIRST IMMORTAL?

Shannon, I just reposted this post...after I spoke with Bill.
I suggest you call Bill directly at the hospital in about an hour to discuss
possibilities. The doctors Tham provided have been eliminated by Bill as unable to help.
If he were at home, there might be a chance of getting him a doctor..but in the hospital,
no. They are going to do chemo again....The phone
number is in the post before this one. Here's the number for your convenience 207 662 3743. try in about an hour. I think
they are giving him medication now.


Edited by missminni, 12 December 2008 - 06:51 PM.


#69 missminni

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Posted 12 December 2008 - 01:19 PM

Thank you, Shannon. At least that solves the funding
problem.

However, when Bill said he called this center which I had
linked him to earlier, he mentioned they charged $175 per
session of IV C, 100 grams. $1,500 would just be enough for
about 8 sessions. It seems a single cycle is 10 sessions.

I don't know the costs for a doctor visit to his house or
the hospital, but it would be likely two or three times this.

http://www.mainewellness.com/


Anyway, I'll write to them and find out more.


Minni, which hospital is Bill in now ? I can't find
any radiologist or radiation oncologist named Jeff
at the following. What's his oncologist's name ?

http://www.mmc.org/

http://www.goodallhosp.org/

http://www.mercyhospital.com/


This one at Scarborough is where the Amrubicin trial
is underway now (and where Bill should have gone to
in the first place).

http://www.mccm.org/...p;CancerType=22


I think I've found Jeff :

http://www.smmc.org/...hp?choice=you_j

http://www.spectrumm...PhysicianID=343

http://www.spectrumm...;FacilityID=112

I think this is he guy. You might have found him, but Bill said he wouldn't be able to do anything for him while he is in the hospital because the other
doctor put the whammy on it.
If you want to contact him and explain the situation to him and pass on your amazing grasp of treating cancer, which i do not have,
maybe you will impress him and get him back involved...if nothing else than to help Bill when he gets out of the hospital after chemo.
I think it would be worth a shot. You can email him.

Edited by missminni, 12 December 2008 - 01:21 PM.


#70 missminni

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Posted 12 December 2008 - 01:27 PM

Okay. I called Dr. Young and left a message for him to call me.
I asked for an email address, but they said if I left my number he would call me back.
I'll just tell him what is going on and see if he can help at all.
It's a long shot, but it's the only one we've got. Anthony, If you are reading, I think
you are more qualified than I to speak with him.


#71 tham

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Posted 12 December 2008 - 03:43 PM

I think contacting Dr Jeff Young isn't the answer. He is only
the radiation oncologist, and has no authority over Bill's
treatment, which is basically under the overall direction of
his primary care physician at Maine Medical Center - his
medical oncologist. Jeffrey Young only oversees a branch
of Bill's treatment - his radiotherapy protocol.

Is his oncologist's name is Kirk or Kurt ? I think this
is the one. There is no "Kirk" at MMC.

http://my.mmc.org/ap...physicianID=988

He is also attached to the Maine Center for Cancer Medicine :

http://www.mccm.org/...y...am&id=31129


The amrubicin trial at MCCM is under the direction of
Matthew Dugan :

http://www.mccm.org/...y...am&id=36255


From the phone number you gave, it appears Bill is at the
Bramhall campus of the Maine Medical Center in Portland,
where Jeffrey Young is also attached.

http://www.spectrumm...p;FacilityID=29

Edited by tham, 12 December 2008 - 03:46 PM.


#72 tham

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Posted 12 December 2008 - 04:00 PM

As long as Bill is at MMC, he will be under Kurt Ebrahim,
whom as you said won't let him have access to IV C.
HIs only option is if he checks out of the hospital and
goes home.

The other option would be to go over to MCCM, but Bill
is already out of contention for the amrubicin trial. This
additional chemo cycle which Kurt is putting him on today
looks like the third one ?

#73 missminni

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Posted 12 December 2008 - 04:03 PM

I think contacting Dr Jeff Young isn't the answer. He is only
the radiation oncologist, and has no authority over Bill's
treatment, which is basically under the overall direction of
his primary care physician at Maine Medical Center - his
medical oncologist. Jeffrey Young only oversees a branch
of Bill's treatment - his radiotherapy protocol.

Is his oncologist's name is Kirk or Kurt ? I think this
is the one. There is no "Kirk" at MMC.

http://my.mmc.org/ap...physicianID=988

He is also attached to the Maine Center for Cancer Medicine :

http://www.mccm.org/...y...am&id=31129


The amrubicin trial at MCCM is under the direction of
Matthew Dugan :

http://www.mccm.org/...y...am&id=36255


From the phone number you gave, it appears Bill is at the
Bramhall campus of the Maine Medical Center in Portland,
where Jeffrey Young is also attached.

http://www.spectrumm...p;FacilityID=29

Actually, he is the only hope. He was totally sympathetic to Bill before the other doctor got hold of him. He knows all the details too.
Maybe he will have some ideas. The other doctors you got from Acam, according to Bill, are not suitable.
Dr. Young is in a position to help.
There is a big snow storm in Portland Maine and the phone lines and power lines are down. It's all over the news here.
I got a phone call earlier but there was a bunch of static on the line and I am thinking it was him calling back unable to get through. At this point, since Bill is going to do chemo again, it would be good to arrange some follow-up protocol with Dr. Young. I just hope he gets back with me. If not, I will call again this afternoon.


#74 missminni

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Posted 12 December 2008 - 04:09 PM

As long as Bill is at MMC, he will be under Kurt Ebrahim,
whom as you said won't let him have access to IV C.
HIs only option is if he checks out of the hospital and
goes home.

The other option would be to go over to MCCM, but Bill
is already out of contention for the amrubicin trial. This
additional chemo cycle which Kurt is putting him on today
looks like the third one ?

We were posting at the same time.
Yeah, I think it's the third or fourth.
They will put him on it today or tomorrow and feed him the usual
intravenous garbage. What I am thinking is if I can reach Dr. Young and
arrange for some follow up protocol for when Bill goes home after...
right now they are keeping him in the hospital for the chemo treatments...
maybe we can get the vitamin protocol going then. Dr. Young was going to
hook Bill up with a doctor who was going to do that before all this mess
with Kurt started.


#75 tham

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Posted 12 December 2008 - 04:29 PM

Minni, from your PM, it appears three people are tying
Bill's hands now - Kurt, Carol and Bill himself.

Why did he go back to that hospital ? Why didn't he
just go over to Maine Wellness Integrative Center
when he had the free choice and was still in fairly
good shape over a month ago, when I gave him the link ?

The chemical you mentioned which that center's vitamin C
infusion has shouldn't be a problem, Bill probably made
too much of a fuss about it. I'm sure the chelation doctors
there are experienced with it and knows how to work around
it, having given it to many other patients before. It's probably
just a mild venous constrictor, I'm sure they have other
drugs to counteract any side effects if there is a need to.

The RECNAC protocol must have been given to virtually
thousands of cancer patients by now since it was first
developed by Hugh Riordan over a decade ago. There
shouldn't be any problem, other than a Herxheimer reaction
which can be easily managed by the doctors.

Bill seems quite adamant and nonchalant in his personality - for
example, he didn't seem to listen to me and David when we told
him about the powerful abilities of sodium valproate against SCLC.
Quite simply, all he had to do was request that oncologist, or any
other doctor for that matter (including Jeff Young) to write him a
prescription for that drug.

Over here in Malaysia, all I have to do is just drive over to my
usual pharmacy, buy Epilim (sodium valproate) over the counter
(although technically it has to be dispensed by the pharmacist),
go home and pop a tablet into my mouth. That was what I was
thinking of trying out for my tinnitus years ago, if not for its
liver toxicity. Costs M$1.80 for a 500 mg sustained-release tab
currently - about 50 cents over there. Must have been less
than half this at that time.

#76 missminni

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Posted 12 December 2008 - 05:34 PM

Minni, from your PM, it appears three people are tying
Bill's hands now - Kurt, Carol and Bill himself.

Why did he go back to that hospital ? Why didn't he
just go over to Maine Wellness Integrative Center
when he had the free choice and was still in fairly
good shape over a month ago, when I gave him the link ?

The chemical you mentioned which that center's vitamin C
infusion has shouldn't be a problem, Bill probably made
too much of a fuss about it. I'm sure the chelation doctors
there are experienced with it and knows how to work around
it, having given it to many other patients before. It's probably
just a mild venous constrictor, I'm sure they have other
drugs to counteract any side effects if there is a need to.

The RECNAC protocol must have been given to virtually
thousands of cancer patients by now since it was first
developed by Hugh Riordan over a decade ago. There
shouldn't be any problem, other than a Herxheimer reaction
which can be easily managed by the doctors.

Bill seems quite adamant and nonchalant in his personality - for
example, he didn't seem to listen to me and David when we told
him about the powerful abilities of sodium valproate against SCLC.
Quite simply, all he had to do was request that oncologist, or any
other doctor for that matter (including Jeff Young) to write him a
prescription for that drug.

Over here in Malaysia, all I have to do is just drive over to my
usual pharmacy, buy Epilim (sodium valproate) over the counter
(although technically it has to be dispensed by the pharmacist),
go home and pop a tablet into my mouth. That was what I was
thinking of trying out for my tinnitus years ago, if not for its
liver toxicity. Costs M$1.80 for a 500 mg sustained-release tab
currently - about 50 cents over there. Must have been less
than half this at that time.

Carol has nothing to do with it. She is just obeying Bill's instructions.
Maybe Bill made some choices that in retrospect weren't so great,
but we can't cry over spilled milk now and the last thing Bill needs to
read is about how he shoulda coulda woulda.
I don't believe he is any condition to check out of the hospital, and
he seems to be too sick and disabled to just get up and walk out
and start all over somewhere else without an admitting doctor.
It appears that this is a very politically charged issue.


#77 theone

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Posted 12 December 2008 - 07:23 PM

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#78 VictorBjoerk

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Posted 12 December 2008 - 07:25 PM

so why can't any other doctor travel to the hospital and give him vitamins or whatever IV if that doctor doesn't want that?

How much money is missing for the procedure?

#79 missminni

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Posted 12 December 2008 - 07:36 PM

so why can't any other doctor travel to the hospital and give him vitamins or whatever IV if that doctor doesn't want that?

How much money is missing for the procedure?

Because the doctor in charge is just that. In charge and in control. If Bill wants to use
vitamin IV he will have to use it on his own outside of the hospital, and his doctor doesn't want to know about it.
As I said, it's all very politcally charged. I don't know how much money is missing because we still haven't found
a doctor to do it. I haven't heard back from Dr. Young. There's a storm in Portland and a lot of their power lines are down
today. I'll try again tomorrow.


#80 Shannon Vyff

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Posted 12 December 2008 - 07:47 PM

so why can't any other doctor travel to the hospital and give him vitamins or whatever IV if that doctor doesn't want that?

How much money is missing for the procedure?

Because the doctor in charge is just that. In charge and in control. If Bill wants to use
vitamin IV he will have to use it on his own outside of the hospital, and his doctor doesn't want to know about it.
As I said, it's all very politcally charged. I don't know how much money is missing because we still haven't found
a doctor to do it. I haven't heard back from Dr. Young. There's a storm in Portland and a lot of their power lines are down
today. I'll try again tomorrow.



I didn't realize that the weather was complicating travel. I hope some headway is made, there is enough money for a Dr. to be paid--but we've been seeing that our ImmInst volunteers, friends of Bill's are running into a lot of problems. It sound like Carol is not able to get on-line and read all the information here? I wonder if she'd be willing to arrange for Anthony, or Missminni to talk on the cell with William, so they can explain what has been found out about Doctors in the area, how the funds are available and if he authorizes treatment? It seems all have their hands tied, unless William can authorize that they are able to help him.

#81 VictorBjoerk

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Posted 12 December 2008 - 07:54 PM

well, why not fill the doctors mailbox with letters explaining that we want him to get Vitamin C IV treatment immediately?

If 100 persons sends him an e-mail I am sure something will happen!

#82 missminni

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Posted 12 December 2008 - 08:17 PM

so why can't any other doctor travel to the hospital and give him vitamins or whatever IV if that doctor doesn't want that?

How much money is missing for the procedure?

Because the doctor in charge is just that. In charge and in control. If Bill wants to use
vitamin IV he will have to use it on his own outside of the hospital, and his doctor doesn't want to know about it.
As I said, it's all very politcally charged. I don't know how much money is missing because we still haven't found
a doctor to do it. I haven't heard back from Dr. Young. There's a storm in Portland and a lot of their power lines are down
today. I'll try again tomorrow.



I didn't realize that the weather was complicating travel. I hope some headway is made, there is enough money for a Dr. to be paid--but we've been seeing that our ImmInst volunteers, friends of Bill's are running into a lot of problems. It sound like Carol is not able to get on-line and read all the information here? I wonder if she'd be willing to arrange for Anthony, or Missminni to talk on the cell with William, so they can explain what has been found out about Doctors in the area, how the funds are available and if he authorizes treatment? It seems all have their hands tied, unless William can authorize that they are able to help him.

It's so compicated. Carol doesn't leave her phone with Bill. It's her only phone. She lives 60 miles from the hospital, so she's not there with him but sometimes. Quite honestly, I think if I told Bill I was trying to contact Dr. Young, he might object...I did it anyway, because I can't contact Bill now. Reaching him this morning was just luck. I've tried again with
no luck. As for Carol, she didn't know anything about the forum and seemed very confused about it all. Bill doesn't discuss that stuff with her. I explained
what we were doing etc, gave her my number and Anthony's number.
Bill is on so much pain meds now, it's hard for him to stay in contact. We can't really make any moves without his approval.
It's not like we are family members or next of kin. I am hoping to speak with dr. young and make some sort of plan
for when he is out of chemo.

Edited by missminni, 12 December 2008 - 08:18 PM.


#83 missminni

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Posted 12 December 2008 - 08:20 PM

well, why not fill the doctors mailbox with letters explaining that we want him to get Vitamin C IV treatment immediately?

If 100 persons sends him an e-mail I am sure something will happen!

I agree. I think that's a great idea, but I think Bill might object because he wouldn't want to anger him...it's a sad situation. Also, I don't have
his email address.

#84 scorpe

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Posted 12 December 2008 - 11:03 PM

so why can't any other doctor travel to the hospital and give him vitamins or whatever IV if that doctor doesn't want that?

How much money is missing for the procedure?

Because the doctor in charge is just that. In charge and in control. If Bill wants to use
vitamin IV he will have to use it on his own outside of the hospital, and his doctor doesn't want to know about it.
As I said, it's all very politcally charged. I don't know how much money is missing because we still haven't found
a doctor to do it. I haven't heard back from Dr. Young. There's a storm in Portland and a lot of their power lines are down
today. I'll try again tomorrow.



I didn't realize that the weather was complicating travel. I hope some headway is made, there is enough money for a Dr. to be paid--but we've been seeing that our ImmInst volunteers, friends of Bill's are running into a lot of problems. It sound like Carol is not able to get on-line and read all the information here? I wonder if she'd be willing to arrange for Anthony, or Missminni to talk on the cell with William, so they can explain what has been found out about Doctors in the area, how the funds are available and if he authorizes treatment? It seems all have their hands tied, unless William can authorize that they are able to help him.

It's so compicated. Carol doesn't leave her phone with Bill. It's her only phone. She lives 60 miles from the hospital, so she's not there with him but sometimes. Quite honestly, I think if I told Bill I was trying to contact Dr. Young, he might object...I did it anyway, because I can't contact Bill now. Reaching him this morning was just luck. I've tried again with
no luck. As for Carol, she didn't know anything about the forum and seemed very confused about it all. Bill doesn't discuss that stuff with her. I explained
what we were doing etc, gave her my number and Anthony's number.
Bill is on so much pain meds now, it's hard for him to stay in contact. We can't really make any moves without his approval.
It's not like we are family members or next of kin. I am hoping to speak with dr. young and make some sort of plan
for when he is out of chemo.



Is it not possible to send him a cheap prepaid phone so he can be reached?

#85 tham

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Posted 13 December 2008 - 05:07 AM

well, why not fill the doctors mailbox with letters explaining that we want him to get Vitamin C IV treatment immediately?

If 100 persons sends him an e-mail I am sure something will happen!



He might consider all this as spam, get irritated, activate his spam control to "HIGH", block
all mails coming from Imminst members, ignore everyone and just go ahead with his chemo.

Primary care physicians usually don't want friends or relatives interfering with their treatments.
Remember he's the doctor in charge.

#86 tham

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Posted 13 December 2008 - 05:51 AM

Carol has nothing to do with it.
She is just obeying Bill's instructions.




Carol has nothing to do with this ? Bill's instructions ?

You mentioned that Carol is "very protective" of him, wouldn't give you
any info and hasn't returned your calls or called Anthony after you
gave your phone numbers.

How could these be Bill's instructions ?

I don't know what's going on, really.

As Kismet noted, the situation now is abysmal and out of control.

At this rate, nobody is going to be able to help Bill. Everyone seems to
have their hands tied, as Shannon noted.

And even if you finally manage to contact Bill at the hospital or after he is
discharged, I doubt if Bill would want to go ahead with the IV C. He wasn't
keen earlier when he was at home,in much better shape, and posting here.
He seems concerned about the venous constrictor in the Maine Integrative
Center's vitamin C infusions. He also felt the cost of $175 per treatment
(at the center) was too high, and wasn't keen on using his supplements
or Paypal funds for this purpose.

In any case, I don't think there's enough funds for in-house or in-hospital therapy
by a doctor coming from the Maine Integrative Center or elsewhere - there is
barely $2,000 ($1,500 in the supplements fund and $446 in the Imminst
Paypal fund as reported by Mind), without going for the Cryonics fund.
Such visits would cost at least twice the above.

And you noted that Bill won't use the Cryonics fund for other purposes, as
he feels it would be unethical to the members who had donated.

But I guess requests could be made for more donations to the supplements and
Paypal funds to continue the IV C sessions, once a doctor is found for this purpose
and the ball starts rolling (and he is allowed access to the hospital if it is going to
be performed there, that is).

#87 Shannon Vyff

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Posted 13 December 2008 - 06:01 AM

If Missminni or Anthony can talk to William, he needs to sign the contract that was sent to him by Mike Perry for the Venturists, or else he will not be able to be cryonically suspended. I'm wondering if anyone that talks to William can ask him to let Carol work with certain people like Anthony and Mike for William. William will need someone to help him print and sign the Venturist document. If anyone contacts a Dr. that will do the I.V. therapy, they will need William's consent for them to set it up. At this point William will need to trust the people that want to help him. We need to get him on the phone, ask him to let Carol work with us, let the person calling him have authorization to set up the I.V. vitamin treatment, see if he'll ask Carol to get the document printed & signed, then the person calling will need to work with Carol to get things done. This can still be done, William just needs to authorize it.

#88 NoDoubt

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Posted 13 December 2008 - 01:15 PM

You are right, Shannon, this might be the right action plan. Time is running out, and it is very important to obtain Bill's consent before he is too exhausted by his next round of chemo.
However, should Bill sign the cryonics agreement, we are still only half the way on the cryonics found. Is there any possibility that CI considers the particular case of Bill so as to suspend him anyway?

Edited by NoDoubt, 13 December 2008 - 01:19 PM.


#89 kismet

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Posted 13 December 2008 - 02:12 PM

However, should Bill sign the cryonics agreement, we are still only half the way on the cryonics found. Is there any possibility that CI considers the particular case of Bill so as to suspend him anyway?

Maybe they could consider some kind of a credit, if he needs cryo before the funds are there. We'd have more time to raise the remaining money afterwards.

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#90 eternaltraveler

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Posted 13 December 2008 - 04:02 PM

If Missminni or Anthony can talk to William, he needs to sign the contract that was sent to him by Mike Perry for the Venturists, or else he will not be able to be cryonically suspended. I'm wondering if anyone that talks to William can ask him to let Carol work with certain people like Anthony and Mike for William. William will need someone to help him print and sign the Venturist document. If anyone contacts a Dr. that will do the I.V. therapy, they will need William's consent for them to set it up. At this point William will need to trust the people that want to help him. We need to get him on the phone, ask him to let Carol work with us, let the person calling him have authorization to set up the I.V. vitamin treatment, see if he'll ask Carol to get the document printed & signed, then the person calling will need to work with Carol to get things done. This can still be done, William just needs to authorize it.

Bill if you are reading this please sign the damn papers.




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